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We publish the Long-Term Follow-Up Study newsletter three times a year. It includes:

Updates about the latest research
Stories about fellow childhood cancer survivors
Information about helpful resources
Interviews with health care providers and researchers

LTFU Newsletter | Fall 2024

LTFU Newsletter | Summer 2024

LTFU Newsletter | Winter 2023/2024

LTFU Study Newsletter Summer 2023

Benefits of a healthy lifestyle
Primary care providers and survivors
Important study survey still available

LTFU Study Newsletter Spring 2023

Focus on heart health
CHIIP and SALSA: Two lifestyle interventions
Tools healthcare providers can use

LTFU Study Newsletter Fall 2022

What you should know about colorectal cancer and screening
International science and collaboration
LTFU ASPIRES Study: translating screening recommendations to action

Archives

Check out some of our newsletter updates throughout the years.

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2022
LTFU Study Newsletter Summer 2022
- HINT Study: Navigating health insurance
- How health insurance affects your health
- New follow-up survey with a focus on aging, survivors needs, and healthcare utilization
LTFU Study Newsletter Winter 2022
- LTFU Study siblings
- Cancer and families: Perspectives from psychology research
- New study survey will soon be available
2021
LTFU Study Newsletter Spring 2021
- LTFU SLEEPWELL Study for insomnia
- COVID-19 Vaccine
- LTFU Study is the model for a new national study
LTFU Study Newsletter Winter 2021
- LTFU Study: Year in review
- Pain and survivorship
- Follow-up survey update
2020
LTFU Study Newsletter Fall 2020
- A participant shares her story
- Survivorship in a pandemic
- Follow-up survey update
LTFU Study Newsletter Summer 2020
- Nursing profiles: A passion for survivorship
- Research Results: Fertility outcomes of childhood cancer survivors
- The LTFU Study Community
LTFU Study Newsletter Winter 2020
- Survivorship care plans
- Featured Resource: Imerman Angels survivorship mentors
- Research Results: The role of race and ethnicity in survivorship outcomes
2019
LTFU Study Newsletter Autumn 2019
- myLTFU: Your new personal study portal
- Participant input helps shape the LTFU Study
- Sleep, emotional distress, and health during survivorship
LTFU Study Newsletter Summer 2019
- More knowledge, more power
- What happens after your survey is returned?
- Skin cancer early detection practices
- Latest LTFU Study publications
LTFU Study Newsletter Winter 2019
- First mobile study launches
- LTFU participants, now partners for life
- Participant Advisory Council
- Latest results – survivorship and life satisfaction
2018
LTFU Study Newsletter Fall 2018
- Exercise and survivorship: How it helps your health
- Looking Forward: A survivor living life on his own terms
- Sam Watson and the Samfund
LTFU Study Newsletter Summer 2018
- Protecting survivors’ heart health
- Risk of breast cancer after radiation to the chest
- The LTFU Study community
LTFU Study Newsletter Winter 2018
- Survivorship and financial stress
- Exercise and Quality Diet After Leukemia: The EQUAL Study
- The LTFU Study in the news
2017
LTFU Study Newsletter Autumn 2017
- Advancing survivors' knowledge (ASK) about skin cancer
- Meeting survivors' health-related needs
- Looking Forward - A family founded on hope, resources to help survivors preserve fertility
LTFU Study Newsletter Spring 2017
- Shorter survey coming
- Founder receives medal of honor
- EMPOWER Study: Promoting breast cancer screening
- 2016 accomplishments
2016
LTFU Looking Forward August 2016
- A Circle of Giving
- Community Partners: Camp Mak-A-Dream
- Childen's Brain Tumor Foundation
LTFU Looking Forward April 2016
- Introducing a New LTFU Study Newsletter
- Unstoppable Billy Rivard
- mmunity Partners: Julia Stepenske and SurvivorVision.
2015
LTFU Study Newsletter Fall 2015
- Treatment Effects: Hearing and Eyesight
- Audiologic Evaluation
- Growing up with Hearing Loss
LTFU Brief Update July 2015
- Health Changes and Aging
LTFU Brief Update April 2015
- Exercise and Heart Health
LTFU Brief Update January 2015
- Treatment side effects for low-risk leukemia
2014
LTFU Study Newsletter Fall 2014
- Study Leadership Change
- Healthy Habits and Modifiable Risk Factors
- Making Healthy Changes
LTFU Brief Update June 2014
- Skin Cancer
LTFU Brief Update April 2014
- Cardiovascular Risk Factors
LTFU Brief Update February 2014
- Fertility
2013
LTFU Brief Update December 2013
- Radiation Exposure from Medical Scans
LTFU Study Newsletter Summer/Fall 2013
- Biologic samples and genetic research
- Study Update - Gene tests offer hope for future survivors
- Pharmacogenetics and the promise of personalized treatment
- What is a gene, anyway?
LTFU Brief Update June 2013
- Post-Traumatic Stress and Personal Growth
LTFU Brief Update April 2013
- Heart Health
LTFU Brief Update January 2013
- Employment
2012
LTFU Study Newsletter Summer/Fall 2012
- Fertility and Offspring of Childhood Cancer Survivors
- Childhood Cancer Survivors – A Practical Guide (3rd Edition)
- Save the Date for Survivors Day Webcast
LTFU Brief Update April 2012
- Fatigue, Sleep, and Mental Functioning
LTFU Brief Update January 2012
- Expanding the LTFU Study
2011
LTFU Study Newsletter Summer 2011
- Study Update: Independent living
- LIFT-OFF Resources
- Employment issues
- Notes from participants
- Web links
LTFU Brief Update April 2011
- Health Links
LTFU Brief Update January 2011
- Dental Health
2009
LTFU Study Newsletter Fall 2009
- Study Update: Physical activity among survivors
- Dr. Hudson's Comments: How can we help survivors move past roadblocks to
  physical activity?
- Notes from Survivors: A survivor shares how he uses his experiences to help others
  keep active.
- Educational Handout: How can survivors who have been inactive get moving again safely?
LTFU Study Newsletter Spring 2009
- Study Update: Focusing on Risks
- Dr. Hudson's Comments: Screening Tests
- An Interview with Dr. Armstrong: Siblings
- Notes from Survivors: A Sibling Reflects
2008
LTFU Study Newsletter Fall 2008
- Free Help to Quit Smoking
- Study Update: Emotional health
- Add new energy to your life
- Study Update: Fatigue and sleep problems
- Comments by Dr. Lonnie Zeltzer
- Notes from participants
LTFU Study Newsletter Spring 2008
- We Need Your Help
- Study Update: Complementary and Alternative Medicine
- Comments by Dr. Hudson
- Study Update: Physical Activity
- Spring into Action
- Notes from Participants
- Camp Mak-A-Dream Dates
2007
LTFU Study Newsletter Fall 2007
- General Health
- Second Cancers
- Reproductive Health
- Mobility
- Insurance Access
- Emotional Health
- Education
LTFU Study Newsletter Spring 2007
- Dr. Hudson's comments: How do such changes affect overall health?
- Survivor notes: How can you stay healthy in the face of such challenges?
2006
LTFU Study Newsletter Fall 2006
- Study update: Chronic health problems
- Assess your risk
- Camp Mak-A-Dream 2007
- Notes from study participants
LTFU Study Newsletter Spring 2006
- Update on Coordinating Center transition
- Study update: Risk of specific adult cancers
- Take control: Practice healthy habits
- Know the 7 warning signs of adult cancer
- Finding a doctor who understands
- Follow-up clinic to the rescue
- Using the COG screening guidelines
- Published findings
2005
LTFU Study Newsletter Fall 2005
- Study update: Physical limitations (comment by Dr. Hudson)
- A book for your doctor
- Resources for living with limitations
- Advocacy: You've got the power!
- About St. Jude Children's Research Hospital
LTFU Study Newsletter Spring 2005
- Rhabdomyosarcoma survivors - Dr. Hudson
- Know your family health history
- Update from ACOR discussion lists
- Notes from study participants
- ICCCPO parent and survivor conference
- INSERT: "My Family Health Portrait" (from U.S. Surgeon General's History Initiative)
2004
LTFU Study Newsletter Fall 2004
- Bone tumor survivors - Dr. Hudson
- Healthy moves
- Participant profile: Laura Feldman
- "Scope" study news
LTFU Study Newsletter Spring 2004
- LTFU in Newsweek
- Study update: Health status; cancer screening practices
- Your follow-up plan - Dr. Hudson
- New link on LTFU website: ACOR support groups
- View from a long-term survivor
- Notes from study participants
2003
LTFU Study Newsletter Fall 2003
- Study update: Obesity and leukemia
- Brian Price: world champion, leukemia survivor
- Camp Mak-a-Dream a success
- Physical changes after cancer - Dr. Hudson
- Weight loss tips
- Annual investigators' meeting
- LTFU publications to date
LTFU Study Newsletter Spring 2003
- Study update: Health care access
- Finding community care
- Social worker Sally Wiard
- Sally's insurance checklist
- Recommended resources
- Young adult camping conference
2002
LTFU Study Newsletter Fall 2002
- Dealing with emotions after childhood illness - Dr. Hudson
- Study update: Mental health
- Finding community mental health services (insert)
- Study investigator Dr. Brad Zebrack
- Survivors and siblings make history!
- Some famous cohort studies
LTFU Newsletter Winter/Spring 2002
- Meet the Carsons
- Study update: Pregnancy outcomes
- Having children after childhood cancer - Dr. Hudson
- VOLUNTEERS NEEDED
2001
LTFU Study Newsletter Summer 2001
- Meet Mark Miller
- Results of smoking study
- Benefits of quitting smoking
- Quit smoking: resources
- Risk factors for long-term effects: Osteoporosis; heart disease; breast cancer
LTFU Study Newsletter Winter 2001
- Patient Advocate Foundation
- Study update: Secondary cancers
- Thinking about secondary malignancies - Dr. Hudson
- Secondary cancers: Further reading
- Breast cancer after Hodgkin's
- Cancer genes and your family
2000
LTFU Study Newsletter Summer/Fall 2000
- Book: Survivors' guide
- Study update: Thyroid problems after Hodgkin's
- Understanding risk - Dr. Neglia
1999
LTFU Study Newsletter Fall 1999
- Staying healthy - Dr. Hudson
- 6 steps you can take for a healthier life
- Study update: Marriage and divorce
- The "Scope" study
- Letter from a participant: Donna Nave
1998
LTFU Study Newsletter Fall 1998
- Genes and the fight against cancer
- Literature watch
- What is hepatitis C?
1997
LTFU Study Newsletter Summer 1997
- Study stats
- Lit watch
- What about my kids? - Dr. Mulvihill
- Save your smile
- Please stay in touch with us
1996
LTFU Study Newsletter Summer 1996
- Insurance issues
- LTFU clinics
- Fertility in survivors of childhood illnesses
- You and your doctor

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myLTFU

About the Study

Study Updates

Study Partners

For Participants

Participant Benefits

Frequently Asked Questions

Start Your Survey

Update your LTFU Study Information

Resources

Newsletters

Publications

Contact Us

Start Survey

Newsletters

LTFU Newsletter | Fall 2024

LTFU Newsletter | Summer 2024

LTFU Newsletter | Winter 2023/2024

Archives

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