If you think health insurance is confusing, you are not alone.
“Understanding health insurance is challenging for anyone,” says Monica Fawzy Bryant, a cancer rights attorney and chief operating officer for Triage Cancer, an organization that provides free legal and practical education for patients, survivors, and caregivers. “There should be a class in high school on health insurance and finances. These are concerns that we all must navigate but are rarely taught.”
Bryant recently shared key information and reminders to help adult survivors of childhood cancer.
The ACA includes protections that are helpful to cancer survivors:
Young adults who age out of their parents’ insurance may be able to continue that coverage under the Consolidated Omnibus Budget Reconciliation Act (COBRA). But you will likely pay more money out of your pocket than you were paying while working for the company to access that coverage. COBRA only applies to employers with 20+ employees. Certain states may have coverage for smaller employers. Triage Cancer has information on state laws and health insurance options.
When shopping for a plan, Bryant says to look at the total cost and what the plan will cover, and then compare plans. The total cost is more than your monthly premium (what you pay for insurance per month). Total yearly costs include:
Then decide which policy includes the doctors and care you need. Think about these things:
“The best plan for you depends on your situation,” Bryant says. “Generally, people with a cancer history want to be as protected as possible.”
Learn what your plan covers. If your insurance denies your claim, you can ask them to reconsider. This is called an appeal. You have at least two chances to challenge the insurance company. An internal appeal is when you ask the company to reconsider. In an external appeal, an outside organization decides if the insurance company should cover the service.
“In one year, there were 48 million denials for plans sold in the Marketplace, and 99.9% were not appealed,” Bryant says. “However, when appealed, between 40–60% of external appeals are decided in favor of the patient.”
For more information on health insurance, visit triagecancer.org and together.stjude.org. Triage Cancer also has a program where you can schedule a call for one-on-one help.