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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Association analysis of self-reported outcomes with a validated subset

    2024

    Citation: 43(4):642-655

    Author(s): Mirzaei S, Martínez JM, Chow EJ, Ness KK, Hudson MM, Armstrong GT, Yasui Y

    Journal: Stat Med

  • Trans-ancestral genetic risk factors for treatment-related type 2 diabetes mellitus in survivors of childhood cancer

    2024

    Citation: 42(19):2306-2316

    Author(s): Im C, Neupane A, Baedke JL, Lenny B, Delaney A, Dixon SB, Chow EJ, Mostoufi-Moab S, Yang T, Richard MA, Gramatges MM, Lupo PJ, Sharafeldin N, Bhatia S, Armstrong GT, Hudson MM, Ness KK, Robison LL, Yasui Y, Wilson CL, Sapkota Y

    Journal: J Clin Oncol

  • Late subsequent leukemia after childhood cancer: a report from the Childhood Cancer Survivor Study (CCSS)

    2024

    Citation: In Press

    Author(s): Ghosh T, Hyun G, Dhaduk R, Conces M, Arnold MA, Howell RM, Henerson TO, McDonald A, Robison LL, Yasui Y, Ness KK, Armstrong GT, Neglia JP, Turcotte LM

    Journal: Cancer Med

  • Chronic health conditions and longitudinal employment in survivors of childhood cancer

    2024

    Citation: 7(5):e2410731

    Author(s): Bhatt NS, Goodman P, Leisenring WM, Armstrong GT, Chow EJ, Hudson MM, Krull KR, Nathan PC, Oeffinger KC, Robison LL, Kirchhoff AC, Mulrooney DA

    Journal: JAMA Netw Open

  • Neurologic morbidity and functional independence in adult survivors of childhood cancer

    2024

    Citation: 11(2):291-301

    Author(s): Vuotto SC, Wang M, Okcu MF, Bowers SC, Ullrich NJ, Ness KK Li C, Srivastava DK, Howell RM, Gibson TM, Leisenring WM, Oeffinger KC, Robison LL, Armstrong GT, Krull K, Brinkman TM

    Journal: Ann Clin Transl Neurol

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