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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Study of Active LifeStyle Activation (SALSA): Rationale and design of a sequential multiple assignment randomized trial to improve physical activity and diet quality for cancer survivors

    2026

    Citation: In Press

    Author(s): Chow EJ, Lee ED, Hershberger M, Jenssen K, Di C, Doody DR, Hogue B, Mendoza JA, Muller TM, Schwenk JM, Syrjala KL, Xu Y, Yi J, Zhao Y, Armstrong GT, Neuhouser ML, Oeffinger KC

    Journal: JMIR Res Protoc

  • Assessing delivery of and attitudes toward a randomized intervention to increase mammography uptake among childhood cancer survivors: A report from the Childhood Cancer Survivor Study

    2026

    Citation: 44(4):530-545

    Author(s): Wu HV, Oeffinger KC, Chou JF, Henderson TO, Hudson MM, Diller LR, McDonald AJ, Ford J, Mubdi NZ, Rinehart D, Vukadinovich C, Elkin EB, Leisenring WM, Armstrong GT, Ford JS, Moskowitz CS

    Journal: J Psychosoc Oncol

  • Changes in Medicaid enrollment among adult survivors of childhood cancer after Medicaid expansion: a report from the Childhood Cancer Survivor Study

    2026

    Citation: 22(7):1264-1277

    Author(s): Ji X, Hu X, Nathan PC, Leisenring WM, Armstrong GT, Castellino SM, Kirchhoff AC

    Journal: JCO Oncol Pract

  • Chronic health conditions and academic achievement: a Childhood Cancer Survivor Study report

    2026

    Citation: 22(7):1322-1330

    Author(s): Bashore L, Peterson RK, Li C, Liu W, Wang M, Jiwani ZM, McDonald AJ, Lupo PJ, King A, Srivastava D, Leisenring WM, Howell RM, Gibson TM, Oeffinger KC, Armstrong GT, Bowman WP, Krull KR, Edelstein K

    Journal: JCO Oncol Pract

  • Mortality after colorectal cancer among survivors of childhood cancer

    2026

    Citation: 118(3):545-549

    Author(s): Major A, Chou J, Lam H, Kim KE, Turcotte LM, Leisenring W, Yasui Y, Neglia JP, Curry M, Howell RM, Oeffinger KC, Hodgson D, Nathan PC, Armstrong GT, Moskowitz CS, Henderson TO

    Journal: J Natl Cancer Inst

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