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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Fear of cancer recurrence in adult survivors of childhood cancer

    2024

    Citation: 7(10):e2436144

    Author(s): Pizzo A, Leisenring WM, Stratton KL, Lamoureux E, Flynn JS, Alschuler K, Krull KR, Jibb LA, Nathan PC, Olgin JE, Stinson JN, Armstrong GT, Alberts NM

    Journal: JAMA Netw Open

  • Association analysis of self-reported outcomes with a validated subset

    2024

    Citation: 43(4):642-655

    Author(s): Mirzaei S, Martínez JM, Chow EJ, Ness KK, Hudson MM, Armstrong GT, Yasui Y

    Journal: Stat Med

  • Trans-ancestral genetic risk factors for treatment-related type 2 diabetes mellitus in survivors of childhood cancer

    2024

    Citation: 42(19):2306-2316

    Author(s): Im C, Neupane A, Baedke JL, Lenny B, Delaney A, Dixon SB, Chow EJ, Mostoufi-Moab S, Yang T, Richard MA, Gramatges MM, Lupo PJ, Sharafeldin N, Bhatia S, Armstrong GT, Hudson MM, Ness KK, Robison LL, Yasui Y, Wilson CL, Sapkota Y

    Journal: J Clin Oncol

  • Health insurance among survivors of childhood cancer following Affordable Care Act implementation

    2024

    Citation: 116(9):1466-1478

    Author(s): Kirchhoff AC, Waters AR, Liu Q, Ji X, Yasui Y, Yabroff R, Conti RM, Huang I, Henderson TO, Leisenring WM, Armstrong GT, Nathan PC, Park ER

    Journal: J Natl Cancer Inst

  • Adverse childhood experiences, resilience, and cardiovascular disease in adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study

    2024

    Citation: 33(8):1132-1136

    Author(s): Schwartz LF, Stratton KL, Leisenring WM, Rodriguez SM, Alston S, McDonald A, Vukadinovich C, Rinehardt D, Oeffinger KC, Chow EJ, Krull KR, Brinkman TM, Nathan PC, Tan MM, McCrae JS, Burkhardt T, Ness KK, Armstrong GT, Henderson TO

    Journal: Cancer Epidemiol Biomarkers Prev

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