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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Mortality after colorectal cancer among survivors of childhood cancer

    2026

    Citation: 118(3):545-549

    Author(s): Major A, Chou J, Lam H, Kim KE, Turcotte LM, Leisenring W, Yasui Y, Neglia JP, Curry M, Howell RM, Oeffinger KC, Hodgson D, Nathan PC, Armstrong GT, Moskowitz CS, Henderson TO

    Journal: J Natl Cancer Inst

  • Potential of exercise for prevention of cardiovascular disease in survivors of childhood Hodgkin lymphoma

    2026

    Citation: 8(1):87-89

    Author(s): Onerup A, Liu Q, Izumi S, Martínez-Martínez JM, Dixon SB, Chow EJ, Hudson MM, Snyder C, Nathan PC, Armstrong GT, Ness KK, Yasui Y

    Journal: JACC CardioOncol

  • Benefits, harms, and burden of colorectal cancer screening among childhood cancer survivors previously treated with abdominopelvic radiation

    2026

    Citation: 44(4):286-299

    Author(s): Yeh JM, Seguin CL, Stratton KL, Leisenring WM, Armstrong GT, Henderson TO, Hudson MM, Nathan PC, Neglia JP, Oeffinger KC, Diller LR, Knudsen AB

    Journal: J Clin Oncol

  • Breast cancer recurrence and mortality among survivors of childhood cancer

    2026

    Citation: Epub Jan 7, 2026

    Author(s): Im C, Hasan H, Srinivasan A, Stene E, McDonald AJ, Moskowitz CS, Henderson TO, Armstrong GT, Yasui Y, Nanda R, Oeffinger KC, Neglia JP, Blaes A, Turcotte LM

    Journal: J Natl Cancer Inst

  • Financial hardship & nonadherence to lifestyle & surveillance in survivors of childhood cancer

    2026

    Citation: In Press

    Author(s): Bhatt NS, Wang F, Izumi S, Chen Y, Ohlsen TJD, Armstrong GT, Huang IC, Kirchhoff A, Park ER, Snyder C, Yabroff R, Yasui Y, Natan PC

    Journal: JAMA Netw Open

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