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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • A novel locus on 6p21.2 for cancer treatment-induced cardiac dysfunction among childhood cancer survivors

    2022

    Citation: 114(8):1109-1116

    Author(s): Sapkota Y, Ehrhardt MJ, Qin N, Wang Z, Liu Q, Qiu W, Shelton K, Shao Y, Plyler E, Mulder HL, Easton J, Michael JR, Burridge PW, Wang X, Wilson CL, Jefferies JJ, Chow EJ, Oeffinger KC, Morton LM, Li C, Yang JJ, Zhang J, Bhatia S, Mulrooney DA, Hudson MM, Robison LL, Armstrong GT, Yasui Y

    Journal: J Natl Cancer Inst

  • What are risk factors for and outcomes of late amputation after treatment for lower extremity sarcoma: a Childhood Cancer Survivor Study report

    2022

    Citation: 481(3):526-538

    Author(s): Geiger EJ, Liu W, Srivastava DK, Bernthal NM, Weil BR, Yasui Y, Ness KK, Krull KR, Goldsby RE, Oeffinger KC, Robison LL, Dieffenbach BV, Weldon C, Gebhardt MC, Howell R, Murphy A, Leisenring WM, Armstrong GT, Chow EJ, Wustrack RL

    Journal: Clin Orthop Relat Res

  • Genome-wide association study of pregnancy in childhood cancer survivors: a report from the Childhood Cancer Survivor Study.

    2022

    Citation: 31(9):1858-1862

    Author(s): Rotz SJ, Worley S, Hu B, Bazeley P, Baedke JL, Hudson MM, Kuo DJ, Oeffinger KC, Robison LL, Sahoo D, Wang F, Yasui Y, Armstrong GT, Bhatia S

    Journal: Cancer Epidemiol Biomarkers Prev

  • Cohort Profile: Risk and risk factors for female breast cancer after treatment for childhood and adolescent cancer: an internationally pooled cohort

    2022

    Citation: 12(11):e065910

    Author(s): Wang Y, Kremer LCM, van Leeuwen FE, Armstrong GT, Leisenring W, de Vathaire F, Hudson MM, Kuehni CE, Arnold MA, Haddy N, Demoor-Goldschmidt C, Diallo I, Howell RM, Ehrhardt MJ, Moskowitz CS, Neglia JP, van der Pal HJH, Robison LL, Schaapveld M, Turcotte LM, Waespe N, Ronckers CM, Teepen JC

    Journal: BMJ Open

  • Subsequent malignant neoplasms in the Childhood Cancer Survivor Study: Occurrence of cancer types in which human papillomavirus is an established etiologic risk factor.

    2022

    Citation: 128(2):373-82

    Author(s): Henderson TO, Fowler B, Hamann H, Nathan PC, Whitton J, Leisenring WM, Oeffinger KC, Neglia JP, Turcotte LM, Arnold MA, Conces MR, Howell RM, Robison LL, Armstrong GT, Alexander KA.

    Journal: Cancer

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