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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Long-term outcomes among survivors of childhood osteosarcoma: a report from the Childhood Cancer Survivor Study (CCSS)

    2024

    Citation: 7(10):e31189

    Author(s): Becktell K, Chen Y, Yasui Y, Phelan R, Armstrong GT, Link M, Oeffinger KC, Snyder C, Daw N, Weil B, Weldon C, Chow E, Schwartz CL

    Journal: Pediatr Blood Cancer

  • Health insurance among survivors of childhood cancer following Affordable Care Act implementation

    2024

    Citation: 116(9):1466-1478

    Author(s): Kirchhoff AC, Waters AR, Liu Q, Ji X, Yasui Y, Yabroff R, Conti RM, Huang I, Henderson TO, Leisenring WM, Armstrong GT, Nathan PC, Park ER

    Journal: J Natl Cancer Inst

  • Prevalence of carotid ultrasound screening in survivors of childhood cancer: a report from the Childhood Cancer Survivor Study

    2024

    Citation: In Press

    Author(s): Bryce Y, Whitton JA, Straton K, Leisenring WM, Chow EJ, Armstrong GT, Weil B, Dieffenbach B, Howell RM, Oeffinger KC, Nathan PC, Tonorezos ES

    Journal: Cancer

  • Statistical analysis of self-reported health conditions in cohort studies: handling of missing onset age

    2024

    Citation: 173(2024):111458

    Author(s): Mirzaei S, Martínez JM, Izumi A, Mori M, Amstrong GT, Yasui Y

    Journal: J Clin Epidemiol

  • Fear of cancer recurrence in adult survivors of childhood cancer

    2024

    Citation: 7(10):e2436144

    Author(s): Pizzo A, Leisenring WM, Stratton KL, Lamoureux E, Flynn JS, Alschuler K, Krull KR, Jibb LA, Nathan PC, Olgin JE, Stinson JN, Armstrong GT, Alberts NM

    Journal: JAMA Newt Open

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