Search
Publications Icon

Publications

Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

We're sorry, it looks like there has been an error. Please try again soon.

  • Functional outcomes and social attainment in Asian/Pacific Islander childhood cancer survivors in the United States: a report from the Childhood Cancer Survivor Study.

    2021

    Citation: 30(12):2244-2255

    Author(s): Sato S, Li N, Dixon S, MD, Kato M, Zhang H, Li CK, Howell RM, Leisenring WM, Bhatia S, Oeffinger KC, Armstrong GT, Yasui Y, Krull KR, Cheung YT.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Long-term neurocognitive and psychosocial outcomes after Acute Myeloid Leukemia: a Childhood Cancer Survivor Study report.

    2021

    Citation: 113(4):481-495

    Author(s): Stefanski K, Anixt JS, Goodman P, Bowers K, Leisenring W, Baker KS, Burns K, Howell R, Davies S, Robison LL, Armstrong GT, Krull KK, Recklitis C.

    Journal: J Natl Cancer Inst

  • Comprehensive molecular characterization of pediatric radiation-induced high-grade glioma.

    2021

    Citation: 12(1):5531

    Author(s): DeSisto J, Lucas JT, Xu K, Donson A, Lin T, Sanford B, Wu G, Tran QT, Hedges D, Hsu C, Armstrong GT, Arnold M, Bhatia S, Flannery P, Lemma R, Hardie L, Schüller U, Venkataraman S, Hoffman LM, Dorris K, Levy JM, Hankinson TC, Handler M, Liu A, Foreman N, Vibhakar R, Jones K, Allen S, Zhang J, Baker SJ, Merchant TE, Orr BA, Green AL.

    Journal: Nat Commun

  • Material, behavioral, and psychological financial hardship among survivors of childhood cancer in the Childhood Cancer Survivor Study.

    2021

    Citation: 127(17):3214-3222

    Author(s): Fair D, Park ER, Nipp RD, Rabin J, Hyland K, Kuhlthau K, Perez GK, Nathan PC, Armstrong GT, Oeffinger KC, Robison LL, Leisenring WM, Kirchhoff AC.

    Journal: Cancer

  • Statistical analysis of clustered mixed recurrent-event data with application to a cancer survivor study.

    2020

    Citation: 26(4):820-832

    Author(s): Zhu L, Choi S, Li Y, Huang X, Sun J, Robison LL.

    Journal: Lifetime Data Anal

Related Information