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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Late health outcomes among survivors of Wilms tumor diagnosed over three decades: a report from the Childhood Cancer Survivor Study

    2023

    Citation: 41(14):2638-2650

    Author(s): Weil BR, Murphy AJ, Liu Q, Howell RM, Smith SA, Weldon CB, Mullen EA, Madenci AL, Leisenring WM, Neglia JP, Turcotte LM, Oeffinger KC, Termuhlen AM, Mostoufi-Moab S, Levine JM, Krull KR, Yasui Y, Robison LL, Armstrong GT, Chow EJ, Armenian SH

    Journal: J Clin Oncol

  • Polygenic risk and chemotherapy-related subsequent malignancies in childhood cancer survivors: a Childhood Cancer Survivor Study and St Jude Lifetime cohort study report

    2023

    Citation: 41(27):4381-4393

    Author(s): Im C, Sharafeldin N, Yuan Y, Wang Z, Sapkota Y, Lu Z, Spector LG, Howell RM, Arnold MA, Hudson MM, Ness KK, Robison LL, Bhatia S, Armstrong GT, Neglia JP, Yasui Y, Turcotte LM

    Journal: J. Clin Oncol

  • Development and validation of a prediction model for kidney failure in long-term survivors of childhood cancer

    2023

    Citation: 41(12):2258-2268

    Author(s): Wu NL, Chen Y, Dieffenbach BV, Ehrhardt MJ, Hingorani S, Howell RM, Jeffries JL, Mulrooney DA, Oeffinger KC, Robison LL, Weil BR, Yuan Y, Yasui Y, Hudson MM, Leisenring WM, Armstrong GT, Chow EJ

    Journal: J Clin Oncol

  • Cardiovascular risk factor disparities in adult survivors of childhood cancer compared with the general population

    2023

    Citation: 5(4):489-500

    Author(s): Noyd DH, Liu Q, Yasui Y, Chow EJ, Bhatia S, Nathan PC, Landstrom AP, Tonorezos E, Casillas J, Berkman A, Ness KK, Mulrooney DA, Leisenring WM, Howell CR, Shoag J, Kirchhoff A, Howell RM, Gibson TM, Zullig LL, Armstrong GT, Oeffinger KC

    Journal: JACC CardioOncol

  • Advancing Survivors Knowledge (ASK Study) of skin cancer surveillance after childhood cancer: a randomized controlled trial in the Childhood Cancer Survivor Study

    2023

    Citation: 41(12):2269-2280

    Author(s): Geller AC, Coroiu A, Keske RR, Haneuse S, Davine JA, Emmons KM, Daniel CL, Gibson TM, McDonald AJ, Robison LL, Mertens AC, Elkin EB, Marghood A, Armstrong GT

    Journal: J Clin Oncol

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