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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Neurocognitive outcomes and functional independence in adult survivors of childhood medulloblastoma diagnosed over three decades

    2024

    Citation: Epub Jul 4, 2024

    Author(s): Papini C, Mirzaei S, Xing M, Olsson IT, Salloum R, de Blank PMK, Lange KR, King TZ, Srivastava S, Leisenring WM, Howell RM, Oeffinger KC, Robison LL, Armstrong GT, Krull KR, Brinkman TM

    Journal: Neuro Oncol

  • Polygenic risk scores, radiation treatment exposures and subsequent cancer risk in childhood cancer survivors

    2024

    Citation: 30(3):690-698

    Author(s): Gibson TM, Karyadi DM, Hartley SW, Arnold MA, Berrington de Gonzalez A, Conces MR, Howell RM, Kapoor V, Leisenring WM, Neglia JP, Sampson JN, Turcotte LM, Chanock SJ, Armstrong GT, Morton LM

    Journal: Nat Med

  • Adverse childhood experiences, resilience, and cardiovascular disease in adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study

    2024

    Citation: 33(8):1132-1136

    Author(s): Schwartz LF, Stratton KL, Leisenring WM, Rodriguez SM, Alston S, McDonald A, Vukadinovich C, Rinehardt D, Oeffinger KC, Chow EJ, Krull KR, Brinkman TM, Nathan PC, Tan MM, McCrae JS, Burkhardt T, Ness KK, Armstrong GT, Henderson TO

    Journal: Cancer Epidemiol Biomarkers Prev

  • Long-term outcomes among survivors of childhood osteosarcoma: a report from the Childhood Cancer Survivor Study (CCSS)

    2024

    Citation: 7(10):e31189

    Author(s): Becktell K, Chen Y, Yasui Y, Phelan R, Armstrong GT, Link M, Oeffinger KC, Snyder C, Daw N, Weil B, Weldon C, Chow E, Schwartz CL

    Journal: Pediatr Blood Cancer

  • Exercise and QUality diet after Leukemia: a randomized weight loss trial among adult survivors of childhood leukemia in the Childhood Cancer Survivor Study

    2024

    Citation: 33(9):1158-1166

    Author(s): Friedman DN, Chou JF, Clark JM, Moskowitz CS, Ford JS, Armstrong GT, Mubdi N, McDonald A, Nathan PC, Sklar CA, Ramanathan L, Robison LL, Oeffinger KC, Tonorezos ES

    Journal: Cancer Epidemiol Biomarkers Prev

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