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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Genetic risk score enhances the risk prediction of severe obesity in adult survivors of childhood cancer

    2022

    Citation: 28(8):1590-1598

    Author(s): Sapkota Y, Qiu W, Dixon SB, Wilson CL, Wang Z, Zhang J, Leisenring W, Chow EJ, Bhatia S, Armstrong GT, Robison LL, Hudson MM, Delaney A, Yasui Y

    Journal: Nat Med

  • Development and validation of a population-based anatomical colorectal model for radiation dosimetry in late effects studies of survivors of childhood cancer

    2022

    Citation: 176:118-126

    Author(s): Owens CA, Rigaud B, Ludmir EB, Gupta AC, Shrestha S, Paulino AC, Smith SA, Peterson CB, Kry SF, Lee C, Henderson TO, Armstrong GT, Brock KK, Howell RM

    Journal: Radiother Oncol

  • Frequency of pathogenic germline variants in cancer-susceptibility genes in the Childhood Cancer Survivor Study.

    2021

    Citation: 5(2):pkab007

    Author(s): Kim J, Gianferante M, Karyardi DM, Hartley SW, Frone M, Luo W, Robison LL, Armstrong GT, Bhatia S, Dean M, Yeager M, Zhu B, Song L, Sampson JN, Yasui Y, Leisenring WM, Brodie SA, de Andrade K, Forte F, Goldstein A, Khincha P, Machiela MJ, McMaster ML, Nickerson ML, Oba L, Pemov A, Pinheiro M, Rotunno M, Santiago K, Wegman-Ostrosky T, Diver R, Teras L, Freedman N, Hicks BD, Zhu B, Wang M, Jones K, Hutchinson AA, Dagnall C, Savage SA, Tucker M, Chanock SJ, Morton LM, Stewart DR, Mirabello L.

    Journal: JNCI Cancer Spectr

  • Clinical and genetic risk factors for radiation-associated ototoxicity: a report from the Childhood Cancer Survivor Study and the St. Jude Lifetime cohort.

    2021

    Citation: 127(21):4091-4102

    Author(s): Trendowski MR, Baedke J, Sapkota Y, Travis LB, Zhang X, Charif OE, Wheeler HE, Leisenring W, Robison LL, Hudson MM, Morton L, Oeffinger KC, Howell RM, Armstrong GT, Bhatia S, Dolan ME.

    Journal: Cancer

  • Psychological, educational, and social late effects in adolescent survivors of Wilms tumor: A report from the Childhood Cancer Survivor Study.

    2021

    Citation: 30(3):349-360

    Author(s): Foster RH, Hayashi RJ, Wang M, Liu W, Mohrmann C, Howell RM, Smith SA, Gibson TM, Srivastava D, Green DM, Oeffinger KC, Leisenring WM, Robison LL, Armstrong GT, Krull KR, Hardy KK.

    Journal: Psychooncology

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