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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Long-term outcomes among survivors of childhood osteosarcoma: a report from the Childhood Cancer Survivor Study (CCSS)

    2024

    Citation: 7(10):e31189

    Author(s): Becktell K, Chen Y, Yasui Y, Phelan R, Armstrong GT, Link M, Oeffinger KC, Snyder C, Daw N, Weil B, Weldon C, Chow E, Schwartz CL

    Journal: Pediatr Blood Cancer

  • Mechanisms of sleep disturbances in long-term cancer survivors: a Childhood Cancer Survivor Study report

    2024

    Citation: 8(2):pkae010

    Author(s): Daniel LC, Wang H, Brinkman TM, Ruble K, Zhou ES, Palesh O, Stremler R, Howell RM, Mulrooney DA, Crabtree VM, Mostoufi-Moab S, Oeffinger KC, Neglia J, Yasui Y, Armstrong GT, Krull KR

    Journal: JNCI Cancer Spectr

  • Mortality after major cardiovascular events in survivors of childhood cancer

    2024

    Citation: 83(8):827-838

    Author(s): Bottinor W, Im C, Doody DR, Armenian SH, Arynchyn A, Hong B, Howell RM, Jacobs DR, Ness KK, Oeffinger KC, Reiner AP, Armstrong GT, Yasui Y, Chow EJ

    Journal: J Am Coll Cardiol

  • Neurologic morbidity and functional independence in adult survivors of childhood cancer

    2024

    Citation: 11(2):291-301

    Author(s): Vuotto SC, Wang M, Okcu MF, Bowers SC, Ullrich NJ, Ness KK Li C, Srivastava DK, Howell RM, Gibson TM, Leisenring WM, Oeffinger KC, Robison LL, Armstrong GT, Krull K, Brinkman TM

    Journal: Ann Clin Transl Neurol

  • Risk factors for neurocognitive impairment, emotional distress, and poor quality of life in survivors of pediatric rhabdomyosarcoma: a report from the Childhood Cancer Survivor Study

    2024

    Citation: 130(12):2224-2236

    Author(s): Van der Plas E, Darji H, Srivastava DK, Schapiro M, Jeffe D, Perkins S, Howell R, Leisenring W, Armstrong GT, Oeffinger KC, Krull K, Edelstein K, Hayashi RJ

    Journal: Cancer

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