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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Genome-wide association study of posttraumatic stress disorder among childhood cancer survivors: results from the Childhood Cancer Survivor Study and the St. Jude Lifetime Cohort

    2022

    Citation: 12(1):342

    Author(s): Lu D, Sapkota Y, Valdimarsdóttir UA, Koenen KC, Li N, Leisenring WM, Gibson TM, Wilson CL, Robison LL, Hudson MM, Armstrong GT, Krull K, Yasui Y, Bhatia S, Recklitis CJ

    Journal: Transl Psychiatry

  • Health-related and cancer risk concerns among siblings of childhood cancer survivors: a report from the Childhood Cancer Survivor Study (CCSS).

    2022

    Citation: 16(3):624-637

    Author(s): Morales S, Salehabadi SM, Srivastava D, Gibson TM, Leisenring WM, Alderfer MA, Lown EA, Zeltzer LK, Armstrong GT, Krull KR, Buchbinder D.

    Journal: J Cancer Surviv

  • Germline genetic and treatment-related risk factors for diabetes mellitus in survivors of childhood cancer: a report from the Childhood Cancer Survivor Study and St. Jude Lifetime cohorts

    2022

    Citation: e2200239

    Author(s): Richard MA, Mostoufi-Moab S, Rathore N, Baedke J, Brown AL, Chanock SJ, Friedman DN, Gramatges MM, Howell RM, Kamdar KY, Leisenring WM, Meacham LR, Morton LM, Oeffinger KC, Robison LL, Sapkota Y, Sklar CA, Armstrong GT, Bhatia S, Lupo PJ

    Journal: JCO Precis Oncol

  • Short NK- and Naïve T-Cell telomere length is associated with thyroid cancer in childhood cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2022

    Citation: 31(2):453-460

    Author(s): Man T, Aubert G, Richard MA, LeJeune W, Hariri E, Goltsova T, Gaikwad A, Chen Y, Whitton J, Leisenring WM, Arnold MA, Neglia JP, Yasui Y, Robison LL, Armstrong GT, Bhatia S, Gramatges MM.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Pooled analysis of meningioma risk following treatment for childhood cancer

    2022

    Citation: 8(12):1756-1764

    Author(s): Withrow DR, Anderson H, Armstrong GT, Hawkins M, Journy N, Neglia JP, de Vathaire F, Tucker MA, Inskip P, Brenner A, Stovall M, Diallo I, Berrington de Gonzalez A, Veiga LHS

    Journal: JAMA Oncol

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