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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Implementing a mHealth intervention to increase colorectal cancer screening among high-risk cancer survivors treated with radiotherapy in the Childhood Cancer Survivor Study (CCSS).

    2022

    Citation: 22(1):691

    Author(s): Henderson TO, Bardwell JK, Moskowitz CS, McDonald A, Vukadinovich C, Lam H, Curry M, Oeffinger KC, Ford JS, Elkin EB, Nathan PC, Armstrong GT, Kim K

    Journal: BMC Health Serv Res

  • Association of Single-Nucleotide Variants in the human leukocyte antigen and other loci with childhood Hodgkin Lymphoma

    2022

    Citation: 5(8):e2225647

    Author(s): Chen C, Song N, Dong Q, Sun X, Li Z, Mulder HL, Easton J, Zhang J, Yasui Y, Bhatia S, Armstrong GT, Wang H, Ness KK, Hudson MM, Robison LL, Wang Z

    Journal: JAMA Netw Open

  • Body region-specific 3D age-scaling functions for scaling whole-body computed tomography anatomy for pediatric late effects studies.

    2022

    Citation: 8(2)5051

    Author(s): Gupta AC, Owens CA, Shrestha S, Lee C, Smith SA, Weathers RE, Netherton T, Balter PA, Kry SF, Followill DS, Griffin KT, Long JP, Armstrong GT, Howell RM.

    Journal: Biomed Phys Eng Express

  • Impact of risk-stratified therapy on health status in survivors of childhood Acute Lymphoblastic Leukemia: a report from the Childhood Cancer Survivor Study.

    2022

    Citation: 31(1):150-160

    Author(s): Dixon SB, Chen Y, Yasui Y, Pui C, Hunger SP, Silverman LB, Ness KK, Green DM, Howell RM, Leisenring WM, Kadan-Lottick NS, Krull KR, Oeffinger KC, Neglia JP, Hudson MM, Robison LL, Mertens LL, Armstrong GT, Nathan PC.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Breast cancer screening among childhood cancer survivors treated without chest radiation: clinical benefits and cost-effectiveness.

    2022

    Citation: 114(2):235-244

    Author(s): Yeh JM, Lowry KP, Schechter CB, Diller LR, O’Brien G, Alagoz O, Armstrong GT, Hampton JM, Hudson MM, Leisenring W, Liu Q, Mandelblatt JS, Miglioretti DL, Moskowitz CS, Nathan PC, Neglia JP, Oeffinger KC, Trentham-Dietz A, Stout NK.

    Journal: J Natl Cancer Inst

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