Search
Publications Icon

Publications

Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

We're sorry, it looks like there has been an error. Please try again soon.

  • Financial hardship and neighborhood socioeconomic disadvantage in long-term childhood cancer survivors

    2024

    Citation: 8(3):pkae033

    Author(s): Fauer AJ, Qiu W, Huang IC, Ganz PA, Casillas JN, Yabroff RY, Armstrong GT, Leisenring W, Howell R, Howell CR, Kirchhoff AC, Yasui Y, Nathan PC

    Journal: JNCI Cancer Spectr

  • Financial hardship among siblings of long-term survivors of childhood cancer: a Childhood Cancer Survivor Study report

    2024

    Citation: 130(7):1125-1136

    Author(s): Ohlsen TJD, Wang H, Buchbinder D, Huang I, Desai AD, Zheng Z, Kirchhoff AC, Park ER, Krull K, Conti RM, Yasui Y, Leisenring W, Armstrong GT, Yabroff KR, Nathan PC, Chow EJ

    Journal: Cancer

  • Health insurance among survivors of childhood cancer following Affordable Care Act implementation

    2024

    Citation: 116(9):1466-1478

    Author(s): Kirchhoff AC, Waters AR, Liu Q, Ji X, Yasui Y, Yabroff R, Conti RM, Huang I, Henderson TO, Leisenring WM, Armstrong GT, Nathan PC, Park ER

    Journal: J Natl Cancer Inst

  • Health insurance navigation tools intervention: a pilot trial Within the Childhood Cancer Survivor Study

    2024

    Citation: 20(7):953-963

    Author(s): Park ER, Kirchhoff AC, Donelan K, Perez GK, McDonald A, Bliss CC, Foor A, van Thiel Berghuijs KM, Waters AR, Durieux N, Leisenring W, Armstrong GT, Ponzani C, Lopez A, Vaca Lopez PL, Battaglia T, Galbraith AA, Kuhlthau KA

    Journal: JCO Oncol Pract

  • Impact of risk-based therapy on late morbidity and mortality in neuroblastoma survivors: a report from the Childhood Cancer Survivor Study

    2024

    Citation: 116(6):885-894

    Author(s): Friedman DN, Goodman PJ, Leisenring WM, Diller LR, Cohn SL, Howell RM, Smith SA, Tonorezos ES, Wolden SL, Neglia JP, Ness KK, Gibson TM, Nathan PC, Turcotte LM, Weil BR, Robison LL, Oeffinger KC, Armstrong GT, Sklar CA, Henderson TO

    Journal: J Natl Cancer Inst

Related Information