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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Exercise and QUality diet after Leukemia: a randomized weight loss trial among adult survivors of childhood leukemia in the Childhood Cancer Survivor Study

    2024

    Citation: 33(9):1158-1166

    Author(s): Friedman DN, Chou JF, Clark JM, Moskowitz CS, Ford JS, Armstrong GT, Mubdi N, McDonald A, Nathan PC, Sklar CA, Ramanathan L, Robison LL, Oeffinger KC, Tonorezos ES

    Journal: Cancer Epidemiol Biomarkers Prev

  • Fear of cancer recurrence in adult survivors of childhood cancer

    2024

    Citation: 7(10):e2436144

    Author(s): Pizzo A, Leisenring WM, Stratton KL, Lamoureux E, Flynn JS, Alschuler K, Krull KR, Jibb LA, Nathan PC, Olgin JE, Stinson JN, Armstrong GT, Alberts NM

    Journal: JAMA Netw Open

  • Financial hardship and neighborhood socioeconomic disadvantage in long-term childhood cancer survivors

    2024

    Citation: 8(3):pkae033

    Author(s): Fauer AJ, Qiu W, Huang IC, Ganz PA, Casillas JN, Yabroff RY, Armstrong GT, Leisenring W, Howell R, Howell CR, Kirchhoff AC, Yasui Y, Nathan PC

    Journal: JNCI Cancer Spectr

  • Financial hardship among siblings of long-term survivors of childhood cancer: a Childhood Cancer Survivor Study report

    2024

    Citation: 130(7):1125-1136

    Author(s): Ohlsen TJD, Wang H, Buchbinder D, Huang I, Desai AD, Zheng Z, Kirchhoff AC, Park ER, Krull K, Conti RM, Yasui Y, Leisenring W, Armstrong GT, Yabroff KR, Nathan PC, Chow EJ

    Journal: Cancer

  • Health insurance among survivors of childhood cancer following Affordable Care Act implementation

    2024

    Citation: 116(9):1466-1478

    Author(s): Kirchhoff AC, Waters AR, Liu Q, Ji X, Yasui Y, Yabroff R, Conti RM, Huang I, Henderson TO, Leisenring WM, Armstrong GT, Nathan PC, Park ER

    Journal: J Natl Cancer Inst

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