Search
Publications Icon

Publications

Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

We're sorry, it looks like there has been an error. Please try again soon.

  • Trends in physical functioning in acute lymphoblastic leukemia and non-Hodgkin lymphoma survivors across three decades

    2025

    Citation: 19(2):496-506

    Author(s): Wilson CL, Bjornard KL, Partin RE, Kadan-Lottick NS, Nathan PC, Oeffinger KC, Hayashi RJ, Hyun G, Armstrong GT, Leisenring WM, Howell RM, Yasui Y, Dixon SB, Ehrhardt MJ, Robison LL, Ness KK

    Journal: J Cancer Surviv

  • TTN and BAG3 in cancer therapy-related cardiomyopathy among long-term survivors of childhood cancer

    2025

    Citation: 8(6):e2515793

    Author(s): Neupane A, Petrykey K, Li K, French J, Zhou X, Wang J, Im C, Dixon SB, Ehrhardt MJ, Mulrooney DA, Jefferies JL, Gramatges MM, Chow EJ, Bhatia S, Robison LL, Ness KK, Hudson MM, Burridge PW, Armstrong GT, Yasui Y, Sapkota Y

    Journal: JAMA Newt Oncol

  • The ENGAGE Study: a randomized trial optimizing uptake of germline cancer genetic services in childhood cancer survivors

    2025

    Citation: 55:101375

    Author(s): Henderson TO, Egleston B, Howe S, Allen MA, Mim R, Fleisher LG, Elkin EB, Oeffinger KC, Krull KR, Ofidis D, Mcleod B, Griffin H, Wood EM, Cacioppo CN, Brown S, Perpich M, Armstrong GT, Bradbury AR

    Journal: Lancet Reg Health Am

  • Polygenic risk scores, radiation treatment exposures and subsequent cancer risk in childhood cancer survivors

    2024

    Citation: 30(3):690-698

    Author(s): Gibson TM, Karyadi DM, Hartley SW, Arnold MA, Berrington de Gonzalez A, Conces MR, Howell RM, Kapoor V, Leisenring WM, Neglia JP, Sampson JN, Turcotte LM, Chanock SJ, Armstrong GT, Morton LM

    Journal: Nat Med

  • Adverse childhood experiences, resilience, and cardiovascular disease in adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study

    2024

    Citation: 33(8):1132-1136

    Author(s): Schwartz LF, Stratton KL, Leisenring WM, Rodriguez SM, Alston S, McDonald A, Vukadinovich C, Rinehardt D, Oeffinger KC, Chow EJ, Krull KR, Brinkman TM, Nathan PC, Tan MM, McCrae JS, Burkhardt T, Ness KK, Armstrong GT, Henderson TO

    Journal: Cancer Epidemiol Biomarkers Prev

Related Information