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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Subsequent female breast cancer risk associated with anthracycline chemotherapy for childhood cancer

    2023

    Citation: 29(9):2268-2277

    Author(s): Wang Y, Ronckers CM, van Leeuwen FE, Moskowitz CS, Leisenring W, Armstrong GT, de Vathaire F, Hudson MM, Kuehni CE, Arnold MA, Demoor-Goldschmidt C, Green DM, Henderson TO, Howell RM, Ehrhardt MJ, Neglia JP, Oeffinger KC, van der Pal HJH, Robison LL, Scha

    Journal: Nat Med

  • Emotional, behavioral, and physical health consequences of loneliness in young adult survivors of childhood cancer: results from the Childhood Cancer Survivor Study

    2023

    Citation: 129(7):1117-1128

    Author(s): Papini C, Fayad AA, Wang M, Schulte FS, Huang I, Chang Y, Howell RM, Srivastava D, Leisenring WM, Armstrong GT, Gibson TM, Robison LL, Oeffinger KC, Krull KR, Brinkman TM

    Journal: Cancer

  • Cardiac substructure radiation dose and risk of late cardiac disease in survivors of childhood cancer: a report from the Childhood Cancer Survivor Study

    2023

    Citation: 41(22):3826-3838

    Author(s): Bates JE, Shrestha S, Liu Q, Smith SA, Mulrooney DA, Leisenring W, Gibson T, Robison LL, Chow EJ, Oeffinger KC, Armstrong GT, Constine LS, Hoppe BS, Lee C, Yasui Y, Howell RM

    Journal: J Clin Oncol

  • Development and validation of age-specific risk prediction models for primary ovarian insufficiency in long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study and St Jude Lifetime Cohort

    2023

    Citation: 24(12):1434-1442

    Author(s): Im C, Lu Z, Mostoufi-Moab S, Delaney A, Yu L, Baedke JL, Han Y, Sapkota Y, Yasui Y, Chow EJ, Howell RM, Bhatia S, Hudson MM, Ness KK, Armstrong GT, Nathan PC, Yuan Y

    Journal: Lancet Oncol

  • Accumulation of chronic disease among survivors of childhood cancer predicts early mortality

    2023

    Citation: 41(20)3629-3641

    Author(s): Esbenshade AJ, Lu L, Friedman DL, Oeffinger KC, Armstrong GT, Krull KR, Neglia JP, Leisenring WM, Howell R, Partin RE, Sketch A, Robison LL, Ness KK

    Journal: J Clin Oncol

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