Search
Publications Icon

Publications

Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

We're sorry, it looks like there has been an error. Please try again soon.

  • Psychosocial health and chronic health conditions among bereaved siblings: a report from the Childhood Cancer Survivor Study (CCSS)

    2025

    Citation: 72(12):e32076

    Author(s): Sharma P, George N, Srivastava D, Chow EJ, Alderfer MA, Leisenring W, Long KA, Lown AE, Oeffinger KC, Zeltzer LK, Armstrong GT, Krull KR, Brinkman TM, Buchbinder D

    Journal: Pediatr Blood Cancer

  • Subsequent meningiomas among survivors of childhood cancer

    2025

    Citation: 8(12):e2548715

    Author(s): Bowers DC, Cooney T, Chen Y, Yuan Y, Galvin R, Im C, Leisenring W, Brady SW, Smith SA, Howell RM, Arnold MA, Conces M, Yasui Y, Diller LR, Armstrong GT, Neglia JP, Turcotte LM

    Journal: JAMA Netw Open

  • Symptom burden, healthcare utilization, and risky behaviors in survivors of the Childhood Cancer Survivor Study (CCSS): An observation cohort study

    2025

    Citation: 90:103657

    Author(s): Webster RT, Srivastava DK, Xie L, Darji H, Liu W, McGrady ME, Brinkman TM, Alberts NM, Ness KK, Fuemmeler B, Kunin-Batson AS, Huang IC, Armstrong GT, Howell RM, Green DM, Yasui Y, Krull KR

    Journal: EClinicalMedicine

  • Temporal trends of subsequent central nervous system malignancies among survivors of childhood cancer

    2025

    Citation: 117(5):1036-1045

    Author(s): Galvin RT, Chen Y, Yuan Y, Cooney T, Howell R, Smith S, Arnold MA, Conces M, Leisenring W, Armstrong GT, Neglia JP, Turcotte LM

    Journal: J Natl Cancer Inst

  • Treatment, toxicity, and mortality after subsequent breast cancer in female survivors of childhood cancer

    2025

    Citation: 16(1):3088

    Author(s): Im C, Hasan H, Steen E, Monick S, Rader RK, Sheade J, Wolfe H, Lu Z, Spector LG, McDonald AJ, Nolan V, Arnold MA, Conces MR, Moskowitz CS, Henderson TO, Robison LL, Armstrong GT, Yasui Y, Nanda R, Oeffinger KC, Neglia JP, Blaes A, Turcotte LM

    Journal: Nat Commun

Related Information