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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Cohort Profile: Risk and risk factors for female breast cancer after treatment for childhood and adolescent cancer: an internationally pooled cohort

    2022

    Citation: 12(11):e065910

    Author(s): Wang Y, Kremer LCM, van Leeuwen FE, Armstrong GT, Leisenring W, de Vathaire F, Hudson MM, Kuehni CE, Arnold MA, Haddy N, Demoor-Goldschmidt C, Diallo I, Howell RM, Ehrhardt MJ, Moskowitz CS, Neglia JP, van der Pal HJH, Robison LL, Schaapveld M, Turcotte LM, Waespe N, Ronckers CM, Teepen JC

    Journal: BMJ Open

  • Subsequent malignant neoplasms in the Childhood Cancer Survivor Study: Occurrence of cancer types in which human papillomavirus is an established etiologic risk factor.

    2022

    Citation: 128(2):373-82

    Author(s): Henderson TO, Fowler B, Hamann H, Nathan PC, Whitton J, Leisenring WM, Oeffinger KC, Neglia JP, Turcotte LM, Arnold MA, Conces MR, Howell RM, Robison LL, Armstrong GT, Alexander KA.

    Journal: Cancer

  • Genetic risk score enhances the risk prediction of severe obesity in adult survivors of childhood cancer

    2022

    Citation: 28(8):1590-1598

    Author(s): Sapkota Y, Qiu W, Dixon SB, Wilson CL, Wang Z, Zhang J, Leisenring W, Chow EJ, Bhatia S, Armstrong GT, Robison LL, Hudson MM, Delaney A, Yasui Y

    Journal: Nat Med

  • Development and validation of a population-based anatomical colorectal model for radiation dosimetry in late effects studies of survivors of childhood cancer

    2022

    Citation: 176:118-126

    Author(s): Owens CA, Rigaud B, Ludmir EB, Gupta AC, Shrestha S, Paulino AC, Smith SA, Peterson CB, Kry SF, Lee C, Henderson TO, Armstrong GT, Brock KK, Howell RM

    Journal: Radiother Oncol

  • Frequency of pathogenic germline variants in cancer-susceptibility genes in the Childhood Cancer Survivor Study.

    2021

    Citation: 5(2):pkab007

    Author(s): Kim J, Gianferante M, Karyardi DM, Hartley SW, Frone M, Luo W, Robison LL, Armstrong GT, Bhatia S, Dean M, Yeager M, Zhu B, Song L, Sampson JN, Yasui Y, Leisenring WM, Brodie SA, de Andrade K, Forte F, Goldstein A, Khincha P, Machiela MJ, McMaster ML, Nickerson ML, Oba L, Pemov A, Pinheiro M, Rotunno M, Santiago K, Wegman-Ostrosky T, Diver R, Teras L, Freedman N, Hicks BD, Zhu B, Wang M, Jones K, Hutchinson AA, Dagnall C, Savage SA, Tucker M, Chanock SJ, Morton LM, Stewart DR, Mirabello L.

    Journal: JNCI Cancer Spectr

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