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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Polygenic risk and chemotherapy-related subsequent malignancies in childhood cancer survivors: a Childhood Cancer Survivor Study and St Jude Lifetime cohort study report

    2023

    Citation: 41(27):4381-4393

    Author(s): Im C, Sharafeldin N, Yuan Y, Wang Z, Sapkota Y, Lu Z, Spector LG, Howell RM, Arnold MA, Hudson MM, Ness KK, Robison LL, Bhatia S, Armstrong GT, Neglia JP, Yasui Y, Turcotte LM

    Journal: J. Clin Oncol

  • Neurocognitive outcomes in adult survivors of neuroblastoma: a report from the Childhood Cancer Survivor Study

    2023

    Citation: 129(18):2904-2914

    Author(s): Hesko C, Liu W, Srivastava D, Brinkman TM, Diller L, Gibson TM, Oeffinger KC, Leisenring WM, Howell R, Armstrong GT, Krull KR, Henderson TO

    Journal: Cancer

  • Development and validation of a prediction model for kidney failure in long-term survivors of childhood cancer

    2023

    Citation: 41(12):2258-2268

    Author(s): Wu NL, Chen Y, Dieffenbach BV, Ehrhardt MJ, Hingorani S, Howell RM, Jeffries JL, Mulrooney DA, Oeffinger KC, Robison LL, Weil BR, Yuan Y, Yasui Y, Hudson MM, Leisenring WM, Armstrong GT, Chow EJ

    Journal: J Clin Oncol

  • Cardiovascular risk factor disparities in adult survivors of childhood cancer compared with the general population

    2023

    Citation: 5(4):489-500

    Author(s): Noyd DH, Liu Q, Yasui Y, Chow EJ, Bhatia S, Nathan PC, Landstrom AP, Tonorezos E, Casillas J, Berkman A, Ness KK, Mulrooney DA, Leisenring WM, Howell CR, Shoag J, Kirchhoff A, Howell RM, Gibson TM, Zullig LL, Armstrong GT, Oeffinger KC

    Journal: JACC CardioOncol

  • Gene-level analysis of anthracycline-induced cardiomyopathy in cancer survivors: a report from COG-ALTE03N1, BMTSS and CCSS

    2023

    Citation: 5(6):807-818

    Author(s): Sharafeldin N, Zhou L, Singh P, Crossman DK, Wang X, Hageman L, Landier W, Blanco JG, Burridge PW, Sapkota Y, Yasui Y, Armstrong GT, Robison LL, Hudson MM, Oeffinger KC, Chow EJ, Armenian SH, Weisdorf DJ, Bhatia S

    Journal: JACC CardioOncol

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