Skip to Main Content
Publications Icon

Publications

Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

We're sorry, it looks like there has been an error. Please try again soon.

  • Health outcomes in childhood cancer survivors with congenital anomalies in the Childhood Cancer Survivor Study

    2025

    Citation: 34(12):2228-2238

    Author(s): Janitz AE, Qiu W, Schraw JM, Mostoufi-Moab S, Mirabello L, Stewart DR, Neglia JP, Turcotte LM, Bhatia S, Yasui Y, Chow EJ, Armstrong GT, Lupo PJ

    Journal: Cancer Epidemiol Biomarkers Prev

  • Potential of exercise for prevention of cardiovascular disease in survivors of childhood Hodgkin lymphoma

    2025

    Citation: In Press

    Author(s): Onerup A, Liu Q, Izumi S, Martínez-Martínez JM, Dixon SB, Chow EJ, Hudson MM, Snyder C, Nathan PC, Armstrong GT, Ness KK, Yasui Y

    Journal: JACC CardioOncol

  • Contributions of cancer treatment and genetic predisposition to risk of subsequent neoplasms in long-term survivors of childhood cancer: a report from the St Jude Lifetime Cohort and the Childhood Cancer Survivor Study

    2025

    Citation: 26(6):806-816

    Author(s): Neupane A, Liu Q, Taneja S, French J, Ehrhardt MJ, Brinkman TM, Webster R, Yang JJ, Im C, Turcotte LM, Neglia JP, Gramatges MM, Howell RM, Bhatia S, Ness KK, Hudson MM, Armstrong GT, Robison LL, Yasui Y, Sapkota Y

    Journal: Lancet Oncol

  • Late morbidity and mortality in survivors of childhood ependymoma: A report from the Childhood Cancer Survivor Study (CCSS)

    2025

    Citation: 17(22):3669

    Author(s): Lange KR, de Blank P, Xing M, Mirzaei S, Srivastava DK, Oeffinger KC, Neglia J, Krull K, Nathan PC, Howell R, Ness KK, Turcotte LM, Leisenring WM, Armstrong GT, Brinkman T, Bowers DC, Okcu MF

    Journal: Cancers

  • Treatment exposure-based risk-stratification for care of survivors of childhood cancer: a report from the Childhood Cancer Survivor Study

    2025

    Citation: 117(12):2580-2590

    Author(s): Dinan MA, Stratton KL, Leisenring WM, Yasui Y, Chow EJ, Tonorezos ES, Moskowitz CS, Yeh JM, Noyd D, Armstrong GT, Oeffinger KC

    Journal: J Natl Cancer Inst

Related Information