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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Health insurance navigation tools intervention: a pilot trial Within the Childhood Cancer Survivor Study

    2024

    Citation: 20(7):953-963

    Author(s): Park ER, Kirchhoff AC, Donelan K, Perez GK, McDonald A, Bliss CC, Foor A, van Thiel Berghuijs KM, Waters AR, Durieux N, Leisenring W, Armstrong GT, Ponzani C, Lopez A, Vaca Lopez PL, Battaglia T, Galbraith AA, Kuhlthau KA

    Journal: JCO Oncol Pract

  • Risk of increased mortality in underweight survivors: a brief report from the Childhood Cancer Survivorship Study

    2024

    Citation: 71(8):e31080

    Author(s): Tonorezos ES, Chou JF, Moskowitz CS, Leisenring WM, Friedman DN, Sklar CA, Dilley KJ, Hudson MM, Mertens A, Armstrong GT, Robison LL, Meacham LR, Oeffinger KC

    Journal: Pediatr Blood Cancer

  • Risk factors for neurocognitive impairment, emotional distress, and poor quality of life in survivors of pediatric rhabdomyosarcoma: a report from the Childhood Cancer Survivor Study

    2024

    Citation: 130(12):2224-2236

    Author(s): Van der Plas E, Darji H, Srivastava DK, Schapiro M, Jeffe D, Perkins S, Howell R, Leisenring W, Armstrong GT, Oeffinger KC, Krull K, Edelstein K, Hayashi RJ

    Journal: Cancer

  • Mechanisms of sleep disturbances in long-term cancer survivors: a Childhood Cancer Survivor Study report

    2024

    Citation: 8(2):pkae010

    Author(s): Daniel LC, Wang H, Brinkman TM, Ruble K, Zhou ES, Palesh O, Stremler R, Howell RM, Mulrooney DA, Crabtree VM, Mostoufi-Moab S, Oeffinger KC, Neglia J, Yasui Y, Armstrong GT, Krull KR

    Journal: JNCI Cancer Spectr

  • The ENGAGE study: a 3-arm randomized hybrid type 1 effectiveness and implementation study of an in-home, collaborative PCP model of remote telegenetic services to increase uptake of cancer genetic services in childhood cancer survivors

    2024

    Citation: 24(1):253

    Author(s): Henderson TO, Allen MA, Mim R, Egleston B, Fleisher L, Elkin E, Oeffinger K, Krull K, Ofidis D, Mcleod B, Griffin H, Wood E, Cacioppo C, Weinberg M, Brown S, Howe S, McDonald A, Vukadinovich C, Alston S, Rinehart D, Armstrong GT, Bradbury AR.

    Journal: BMC Health Serv Res

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