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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Basal cell carcinoma risk prediction in survivors of childhood cancer

    2025

    Citation: 117(11):2352-2361

    Author(s): Im C, Boull C, Lu Z, Liao K, Hasan H, Xu L, Sapkota Y, Howell RM, Arnold MA, Conces MR, Housten AJ, Gebauer J, Langer T, Teepen JC, Kremer LCM, Constine LS, Yasui Y, Hudson MM, Ness KK, Armstrong GT, Neglia JP, Yuan Y, Turcotte LM

    Journal: J Natl Cancer Inst

  • Colorectal-specific radiation dose and chemotherapy risk for subsequent colorectal malignancies in childhood cancer survivors: a Childhood Cancer Survivor Study (CCSS) report

    2025

    Citation: 43(31):3403-3421

    Author(s): Owens CA, Ludmir EB, Liu Q, Qiu W, Gupta AC, Smith SA, Rigaud B, Brock KK, Bates JE, Meyers TG, Paulino AC, Peterson CB, Kry SF, Teepen JC, Ronckers CM, Neglia JP, Leisenring WM, Oeffinger KC, Nathan PC, Turcotte LM, Hodgson DC, Hudson MM, Robison LL, Moskowitz CS, Armstrong GT, Henderson TO, Yasui Y, Howell RM

    Journal: J Clin Oncol

  • Genetic contribution to treatment-related dyslipidemia in adult survivors of childhood cancer: findings from the CCSS, SJLIFE, and DCCSS-LATER cohorts

    2025

    Citation: 34(11):2068-2076

    Author(s): Bolier M, Pluimakers VG, Broer L, Neggers SJCMM, de Winter DTC, Wang F, Baedke JL, Uitterlinden AG, Petrykey K, Kremer LC, Loonen JL, Louwerens M, van der Pal HJ, Feijen ELA, Oeffinger KC, Howell RM, Chow EJ, Leisenring WM, Gramatges MM, Mortin LM, Robison LL, Hudson MM, Ness KK, Sapkota Y, Armstrong GT, Bhatia S, Yasui Y, van den Heuvel-Eibrink MM

    Journal: Cancer Epidemiol Biomarkers Prev

  • Psychosocial health and chronic health conditions among bereaved siblings: a report from the Childhood Cancer Survivor Study (CCSS)

    2025

    Citation: 72(12):e32076

    Author(s): Sharma P, George N, Srivastava D, Chow EJ, Alderfer MA, Leisenring W, Long KA, Lown AE, Oeffinger KC, Zeltzer LK, Armstrong GT, Krull KR, Brinkman TM, Buchbinder D

    Journal: Pediatr Blood Cancer

  • Assessing delivery of and attitudes toward a randomized intervention to increase mammography uptake among childhood cancer survivors: A report from the Childhood Cancer Survivor Study

    2025

    Citation: Epub Nov 19, 2025

    Author(s): Wu HV, Oeffinger KC, Chou JF, Henderson TO, Hudson MM, Diller LR, McDonald AJ, Ford J, Mubdi NZ, Rinehart D, Vukadinovich C, Elkin EB, Leisenring WM, Armstrong GT, Ford JS, Moskowitz CS

    Journal: J Psychosoc Oncol

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