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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Colorectal-specific radiation dose and chemotherapy risk for subsequent colorectal malignancies in childhood cancer survivors: a Childhood Cancer Survivor Study (CCSS) report

    2025

    Citation: 43(31):3403-3421

    Author(s): Owens CA, Ludmir EB, Liu Q, Qiu W, Gupta AC, Smith SA, Rigaud B, Brock KK, Bates JE, Meyers TG, Paulino AC, Peterson CB, Kry SF, Teepen JC, Ronckers CM, Neglia JP, Leisenring WM, Oeffinger KC, Nathan PC, Turcotte LM, Hodgson DC, Hudson MM, Robison LL, Moskowitz CS, Armstrong GT, Henderson TO, Yasui Y, Howell RM

    Journal: J Clin Oncol

  • Comprehensive assessment of sexual function in male survivors of childhood cancer: A report from the Childhood Cancer Survivor Study (CCSS)

    2025

    Citation: 131(14):e35967

    Author(s): Marchak JG, Seidel KD, Cherven BO, Klosky JL, Ritenour CWM, Leisenring WM, Sklar CA, Ford JS, Krull KR, Robison LL, Armstrong GT, Meacham LR

    Journal: Cancer

  • Contributions of cancer treatment and genetic predisposition to risk of subsequent neoplasms in long-term survivors of childhood cancer: a report from the St Jude Lifetime Cohort and the Childhood Cancer Survivor Study

    2025

    Citation: 26(6):806-816

    Author(s): Neupane A, Liu Q, Taneja S, French J, Ehrhardt MJ, Brinkman TM, Webster R, Yang JJ, Im C, Turcotte LM, Neglia JP, Gramatges MM, Howell RM, Bhatia S, Ness KK, Hudson MM, Armstrong GT, Robison LL, Yasui Y, Sapkota Y

    Journal: Lancet Oncol

  • Diabetes mellitus and neurocognition: A report from the Childhood Cancer Survivor Study

    2025

    Citation: 131(16):e70011

    Author(s): Webster RT, Mirzaei S, Bhatia S, Srivastava DK, Mostoufi-Moab S, Dixon SB, Chow EJ, Armstrong GT, Krull KR, van der Plas E

    Journal: Cancer

  • DNA damage response and repair genes and anthracycline-induced cardiomyopathy in childhood cancer survivors: a report from the Children’s Oncology Group and the Childhood Cancer Survivor Study

    2025

    Citation: 18(2):e004813

    Author(s): Wang X, Singh P, Cejas RB, Zhou L, Sharafeldin N, Trainor PJ, Landier W, Cheng C, Hageman L, Wang F, Sapkota Y, Yasui Y, Hudson MM, Chow EJ, Armenian SH, Neglia JP, Hawkins DS, Ginsburg JP, Burridge PW, Armstrong GT, Bhatia S.

    Journal: Circ Genom Precis Med

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