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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Contribution of polygenic risk to hypertension among long-term survivors of childhood cancer.

    2021

    Citation: 3(1):76-84

    Author(s): Sapkota Y, Li N, Pierzynski J, Mulrooney DA, Ness KK, Morton LM, Michael JR, Zhang J, Bhatia S, Armstrong GT, Hudson MM, Robison LL, Yasui Y.

    Journal: JACC CardioOncol

  • Sex-specific associations between chemotherapy, chronic conditions, and neurocognitive impairment in ALL survivors: a report from the Childhood Cancer Survivor Study.

    2021

    Citation: 113(5):588-596

    Author(s): Van der Plas E, Qiu W, Nieman BJ, Yasui Y, Liu Q, Dixon S, Kadan-Lottick NS, Weldon CB, Weil BR, Jacola LM, Gibson TM, Leisenring W, Oeffinger K, Hudson MM, Robison LL, Armstrong GT, Krull KR.

    Journal: J Natl Cancer Inst

  • Generalizability of “GWAS hits” in clinical populations: lessons from childhood cancer survivors.

    2021

    Citation: 107(4):636-653

    Author(s): Im C, Qin N, Wang Z, Qui W, Howell CR, Sapkota Y, Moon W, Chemaitilly M, Gibson Tm, Mulrooney DA, Ness KK, Wilson CL, Morton LM, Armstrong GT, Bhatia S, Zhang J, Hudson MM, Robison LL, Yasui Y.

    Journal: Am J Hum Genet

  • Genetic variation in body mass index of adult survivors of childhood acute lymphoblastic leukemia: a report from the Childhood Cancer Survivor Study and St. Jude Lifetime Cohort.

    2021

    Citation: 127(2):310-318

    Author(s): Richard MA, Brown AL, Belmont JMW, Scheurer ME, Arroyo VM, Foster KL, Kern KD, Hudson MM, Leisenring WM, Okcu MF, Sapkota Y, Yasui Y, Morton LM, Chanock SJ, Robison LL, Armstrong GT, Bhatia S, Oeffinger KC, Lupo PJ, Kamdar KY.

    Journal: Cancer

  • Esophageal disease among childhood cancer survivors — a report from the Childhood Cancer Survivors Study.

    2021

    Citation: 68(8):e29043

    Author(s): Asdahl PH, Oeffinger KC, Albieri V, Hudson M, Leisenring WM, Donaldson S, Hasle H, Winther JF, Armstrong GT, Robison LL

    Journal: Pediatr Blood Cancer

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