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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Short NK- and Naïve T-Cell telomere length is associated with thyroid cancer in childhood cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2022

    Citation: 31(2):453-460

    Author(s): Man T, Aubert G, Richard MA, LeJeune W, Hariri E, Goltsova T, Gaikwad A, Chen Y, Whitton J, Leisenring WM, Arnold MA, Neglia JP, Yasui Y, Robison LL, Armstrong GT, Bhatia S, Gramatges MM.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Pooled analysis of meningioma risk following treatment for childhood cancer

    2022

    Citation: 8(12):1756-1764

    Author(s): Withrow DR, Anderson H, Armstrong GT, Hawkins M, Journy N, Neglia JP, de Vathaire F, Tucker MA, Inskip P, Brenner A, Stovall M, Diallo I, Berrington de Gonzalez A, Veiga LHS

    Journal: JAMA Oncol

  • Association of changes in cancer therapy over 3 decades with risk of subsequent breast cancer among female childhood cancer survivors: a report from the Childhood Cancer Survivor Study (CCSS)

    2022

    Citation: 8(12):1765–1774

    Author(s): Henderson TO, Liu Q, Turcotte LM, Neglia JP, Leisenring WM, Hodgson D, Diller L, Kenney L, Morton L, Berrington de Gonzalez A, Arnold M, Bhatia S, Howell RM, Smith SA, Robison LL, Armstrong GT, Oeffinger KC, Yasui Y, Moskowitz CS

    Journal: JAMA Oncol

  • Development and validation of models to predict poor health-related quality of life among adult survivors of childhood cancer

    2022

    Citation: 5(8):2227225

    Author(s): Schulte F, Chen Y, Yasui Y, Ruiz ME, Leisenring WM, Gibson TM, Nathan PC, Oeffinger KC, Hudson MM, Armstrong GT, Robison LL, Krull KR, Huang I

    Journal: JAMA Netw Open

  • A novel locus on 6p21.2 for cancer treatment-induced cardiac dysfunction among childhood cancer survivors

    2022

    Citation: 114(8):1109-1116

    Author(s): Sapkota Y, Ehrhardt MJ, Qin N, Wang Z, Liu Q, Qiu W, Shelton K, Shao Y, Plyler E, Mulder HL, Easton J, Michael JR, Burridge PW, Wang X, Wilson CL, Jefferies JJ, Chow EJ, Oeffinger KC, Morton LM, Li C, Yang JJ, Zhang J, Bhatia S, Mulrooney DA, Hudson MM, Robison LL, Armstrong GT, Yasui Y

    Journal: J Natl Cancer Inst

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