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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Long-term morbidity and mortality among survivors of neuroblastoma diagnosed during infancy: A report from the Childhood Cancer Survivor Study (CCSS)

    2023

    Citation: 41(8):1565-1576

    Author(s): Friedman DN, Goodman PS, Leisenring WM, Diller LR, Cohn SL, Howell RM, Smith SA, Tonorezos ES, Wolden SL, Neglia JP, Ness KK, Gibson TM, Nathan PC, Weil BR, Robison LL, Oeffinger KC, Armstrong GT, Sklar CA, Henderson TO

    Journal: J Clin Oncol

  • Subsequent female breast cancer risk associated with anthracycline chemotherapy for childhood cancer

    2023

    Citation: 29(9):2268-2277

    Author(s): Wang Y, Ronckers CM, van Leeuwen FE, Moskowitz CS, Leisenring W, Armstrong GT, de Vathaire F, Hudson MM, Kuehni CE, Arnold MA, Demoor-Goldschmidt C, Green DM, Henderson TO, Howell RM, Ehrhardt MJ, Neglia JP, Oeffinger KC, van der Pal HJH, Robison LL, Schaapveld M, Turcotte LM, Waespe N, Kremer LCM, Teepen JC

    Journal: Nat Med

  • Inflated expectations: rare-variant association analysis using public controls

    2023

    Citation: 18(1):e0280951

    Author(s): Kim J, Karyadi DM, Hartley SW, Zhu B, Wang M, Wu D, Song L, Armstrong GT, Bhatia S, Robison LL, Yasui Y, Carter B, Sampson JN, Freedman ND, Goldstein AM, Mirabello L, Chanock SJ, Morton LM, Savage SA, Stewart DR

    Journal: PLoS One

  • Underdiagnosis and undertreatment of modifiable cardiovascular risk factors among survivors of childhood cancer.

    2022

    Citation: 11(12):e024735

    Author(s): Chow EJ, Chen Y, Armstrong GT, Baldwin L, Cai CR, Gibson TM, Hudson MM, McDonald A, Nathan PC, Olgin JE, Syrjala KL, Tonorezos ES, Oeffinger KC, Yasui Y

    Journal: J Am Heart Assoc

  • Implementing a mHealth intervention to increase colorectal cancer screening among high-risk cancer survivors treated with radiotherapy in the Childhood Cancer Survivor Study (CCSS).

    2022

    Citation: 22(1):691

    Author(s): Henderson TO, Bardwell JK, Moskowitz CS, McDonald A, Vukadinovich C, Lam H, Curry M, Oeffinger KC, Ford JS, Elkin EB, Nathan PC, Armstrong GT, Kim K

    Journal: BMC Health Serv Res

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