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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Adverse childhood experiences, resilience, and cardiovascular disease in adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study

    2024

    Citation: 33(8):1132-1136

    Author(s): Schwartz LF, Stratton KL, Leisenring WM, Rodriguez SM, Alston S, McDonald A, Vukadinovich C, Rinehardt D, Oeffinger KC, Chow EJ, Krull KR, Brinkman TM, Nathan PC, Tan MM, McCrae JS, Burkhardt T, Ness KK, Armstrong GT, Henderson TO

    Journal: Cancer Epidemiol Biomarkers Prev

  • Comparison of GWAS results between de novo tinnitus and cancer treatment-related tinnitus suggests distinctive roles for genetic risk factors

    2024

    Citation: 14(1):27952

    Author(s): Shahbazi M, Wheeler HE, Armstrong GT, Frisina RD, Travis LB, Dolan ME

    Journal: Sci Rep

  • Long-term outcomes among survivors of childhood osteosarcoma: a report from the Childhood Cancer Survivor Study (CCSS)

    2024

    Citation: 7(10):e31189

    Author(s): Becktell K, Chen Y, Yasui Y, Phelan R, Armstrong GT, Link M, Oeffinger KC, Snyder C, Daw N, Weil B, Weldon C, Chow E, Schwartz CL

    Journal: Pediatr Blood Cancer

  • Chronic health conditions and longitudinal employment in survivors of childhood cancer

    2024

    Citation: 7(5):e2410731

    Author(s): Bhatt NS, Goodman P, Leisenring WM, Armstrong GT, Chow EJ, Hudson MM, Krull KR, Nathan PC, Oeffinger KC, Robison LL, Kirchhoff AC, Mulrooney DA

    Journal: JAMA Netw Open

  • Neurologic morbidity and functional independence in adult survivors of childhood cancer

    2024

    Citation: 11(2):291-301

    Author(s): Vuotto SC, Wang M, Okcu MF, Bowers SC, Ullrich NJ, Ness KK Li C, Srivastava DK, Howell RM, Gibson TM, Leisenring WM, Oeffinger KC, Robison LL, Armstrong GT, Krull K, Brinkman TM

    Journal: Ann Clin Transl Neurol

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