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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Intolerance of uncertainty, psychological symptoms, and pain in long-term childhood cancer survivors: a report from the Childhood Cancer Survivor Study

    2025

    Citation: Epub Jul 23, 2025

    Author(s): Alberts NM, Stratton KL, Leisenring WM, Pizzo A, Lamoureux E, Alschuler K, Flynn J, Krull KR, Jibb LA, Nathan PC, Olgin JE, Stinson JN, Armstrong GT

    Journal: J Cancer Surviv

  • Assessing the effect of virtual navigation interventions to improve health insurance literacy and decrease financial burden in cancer survivors: The HINT II study protocol

    2025

    Citation: 154:107952

    Author(s): Park ER, Kirchhoff AC, Mitchell CO, Durieux N, Foor A, Kuhlthau K, Perez GK, Ards L, Alston S, Armstrong GT, Vaca Lopez PL, McDonald A, Nolan VG, Levy DE, Leisenring WM, Galbraith AA, Nathan PC, Vukadinovich C, Cooper CL, Donelan K

    Journal: Contemp Clin Trials

  • Basal cell carcinoma risk prediction in survivors of childhood cancer

    2025

    Citation: Epub Aug 20, 2025

    Author(s): Im C, Boull C, Lu Z, Liao K, Hasan H, Xu L, Sapkota Y, Howell RM, Arnold MA, Conces MR, Housten AJ, Gebauer J, Langer T, Teepen JC, Kremer LCM, Constine LS, Yasui Y, Hudson MM, Ness KK, Armstrong GT, Neglia JP, Yuan Y, Turcotte LM

    Journal: J Natl Cancer Inst

  • Cardiomyopathy screening adherence among Medicaid-enrolled long-term survivors of childhood cancer

    2025

    Citation: In Press

    Author(s): Hu X, Castellino SM, Srivastava DK, Nathan PC, Armstrong GT, Snyder C, Kirchhoff AC, Ji X

    Journal: Cancer Med

  • Colorectal-specific radiation dose and chemotherapy risk for subsequent colorectal malignancies in childhood cancer survivors: a Childhood Cancer Survivor Study (CCSS) report

    2025

    Citation: In Press

    Author(s): Owens CA, Ludmir EB, Liu A, Qui W, Gupta AC, Smith SA, Rigaud B, Brock KK, Bates JE, Meyers TG, Paulino AC, Peterson CB, Kry SF, Teepen JC, Ronckers CM, Neglia JP, Leisenring WM, Oeffinger KC, Nathan PC, Turcotte LM, Hodgson DC, Hudson MM, Robison LL, Moskowitz CS, Armstrong GT, Yasui Y, Henderson TO, Howell RM

    Journal: J Clin Oncol

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