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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Basal cell carcinoma risk prediction in survivors of childhood cancer

    2025

    Citation: 117(11):2352-2361

    Author(s): Im C, Boull C, Lu Z, Liao K, Hasan H, Xu L, Sapkota Y, Howell RM, Arnold MA, Conces MR, Housten AJ, Gebauer J, Langer T, Teepen JC, Kremer LCM, Constine LS, Yasui Y, Hudson MM, Ness KK, Armstrong GT, Neglia JP, Yuan Y, Turcotte LM

    Journal: J Natl Cancer Inst

  • Body mass index, physical activity, and subsequent neoplasm risk among childhood cancer survivors

    2025

    Citation: 11(8):835-845

    Author(s): Joffe L, Mirzaei S, Bhatia S, Darji H, Ness KK, Onerup A, Ladas EJ, Im C, Lupo PJ, Oeffinger KC, Friedman DN, Howell RM, Conces MR, Arnold MA, Armstrong GT, Neglia JP, Yasui Y, Kadan-Lottick NS, Turcotte L

    Journal: JAMA Oncol

  • Cardiomyopathy screening adherence among Medicaid-enrolled long-term survivors of childhood cancer

    2025

    Citation: 14(15):e71116

    Author(s): Hu X, Castellino SM, Srivastava DK, Nathan PC, Armstrong GT, Snyder C, Kirchhoff AC, Ji X

    Journal: Cancer Med

  • Changes in Medicaid enrollment among adult survivors of childhood cancer after Medicaid expansion: a report from the Childhood Cancer Survivor Study

    2025

    Citation: Epub Oct 17, 2025

    Author(s): Ji X, Hu X, Nathan PC, Leisenring WM, Armstrong GT, Castellino SM, Kirchhoff AC

    Journal: J Natl Cancer Inst

  • Chronic health conditions and academic achievement: a Childhood Cancer Survivor Study report

    2025

    Citation: Epub Sep 8, 2025

    Author(s): Bashore L, Peterson RK, Li C, Liu W, Wang M, Jiwani ZM, McDonald AJ, Lupo PJ, King A, Srivastava D, Leisenring WM, Howell RM, Gibson TM, Oeffinger KC, Armstrong GT, Bowman WP, Krull KR, Edelstein K

    Journal: JCO Oncol Pract

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