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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Clinical benefits, harms, and cost-effectiveness of breast cancer screening for survivors of childhood cancer treated with chest radiation: a comparative modeling study.

    2020

    Citation: 173(5):331-341

    Author(s): Yeh JM, Lowry KP, Schechter CB, Diller LR, Alagoz O, Armstrong GT, Hampton JM, Leisenring WM, Liu Q, Mandelblatt JS, Miglioretti DL, Moskowitz CS, Oeffinger KC, Trentham-Dietz A, Stout NK.

    Journal: Ann Intern Med

  • Development and validation of an age-scalable cardiac model with substructures for dosimetry in late-effects studies of childhood cancer survivors. 

    2020

    Citation: 153:163-171

    Author(s): Shrestha S, Gupta AC, Bates JE, Lee C, Owens CA, Hoppe BS, Constine LS, Smith SA, Qiao Y, Weathers RE, Yasui Y, Court LE, Paulino AC, Pinnix CC, Kry SF, Followill DS, Armstrong GT, Howell RM.

    Journal: Radiother Oncol

  • Association of germline BRCA2 mutations with the risk of pediatric or adolescent non-Hodgkin lymphoma.

    2020

    Citation: 5(9):1362-1364

    Author(s): Wang Z, Wilson CL, Armstrong GT, Hudson MM, Zhang J, Nichols KE, Robison LL.

    Journal: JAMA Oncol

  • Prevalence and predictors of frailty in childhood cancer survivors and siblings: a report from the Childhood Cancer Survivor Study.

    2020

    Citation: 38(3):232-247

    Author(s): Hayek S, Gibson TM, Leisenring WM, Guida JL, Gramatges MM, Lupo PJ, Howell RM, Oeffinger KC, Bhatia S, Edelstein K, Hudson MM, Robison LL, Nathan PC, Yasui Y, Krull KR, Armstrong GT, Ness KK.

    Journal: J Clin Oncol

  • Predicting acute ovarian failure in female survivors of childhood cancer: a cohort study in the Childhood Cancer Survivor Study (CCSS) and the St. Jude Lifetime Cohort (SJLIFE).

    2020

    Citation: 21(3):436-445

    Author(s): Clark RA, Mostoufi-Moab S, Yasui Y, Vu NK, Sklar CA, Motan T, Brooke RJ, Gibson TM, Oeffinger KC, Howell RM, Smith SA, Lu Z, Robison LL, Chemaitilly W, Hudson MM, Armstrong GT, Nathan PC, Yuan Y.

    Journal: Lancet Oncol

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