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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Development and validation of a breast cancer risk prediction model for childhood cancer survivors treated with chest radiation: A report from the Childhood Cancer Survivor Study and the Dutch Hodgkin Late Effects and LATER cohorts.

    2021

    Citation: 39(27):3012-3021

    Author(s): Moskowitz CS, Ronckers CM, Chou JF, Smith SA, Friedman DN, Barnea D, Kok J, de Vries S, Wolden SL, Henderson TO, van der Pal HJH, Kremer LCM, Neglia JP, Turcotte LM, Howell RM, Arnold MA, Schaapveld M, Aleman B, Janus C, Versluys B, Leisenring W, Sklar CA, Begg CB, Pike MC, Armstrong GT, Robison LL, van Leeuwen FE, Oeffinger KC.

    Journal: J Clin Oncol

  • Radiation therapy related cardiac disease risk in childhood cancer survivors: updated dosimetry analysis from the Childhood Cancer Survivor Study.

    2021

    Citation: 163:199-208

    Author(s): Shrestha S, Bates JE, Liu Q, Smith SA, Oeffinger KC, Chow EJ, Gupta AC, Owens CA, Constine LS, Hoppe BS, Leisenring WM, Qiao Y, Weathers RE, Court LE, Pinnix CC, Kry SF, Mulrooney DA, Armstrong GT, Yasui Y, Howell RM.

    Journal: Radiother Oncol

  • Functional outcomes and social attainment in Asian/Pacific Islander childhood cancer survivors in the United States: a report from the Childhood Cancer Survivor Study.

    2021

    Citation: 30(12):2244-2255

    Author(s): Sato S, Li N, Dixon S, MD, Kato M, Zhang H, Li CK, Howell RM, Leisenring WM, Bhatia S, Oeffinger KC, Armstrong GT, Yasui Y, Krull KR, Cheung YT.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Long-term neurocognitive and psychosocial outcomes after Acute Myeloid Leukemia: a Childhood Cancer Survivor Study report.

    2021

    Citation: 113(4):481-495

    Author(s): Stefanski K, Anixt JS, Goodman P, Bowers K, Leisenring W, Baker KS, Burns K, Howell R, Davies S, Robison LL, Armstrong GT, Krull KK, Recklitis C.

    Journal: J Natl Cancer Inst

  • Comprehensive molecular characterization of pediatric radiation-induced high-grade glioma.

    2021

    Citation: 12(1):5531

    Author(s): DeSisto J, Lucas JT, Xu K, Donson A, Lin T, Sanford B, Wu G, Tran QT, Hedges D, Hsu C, Armstrong GT, Arnold M, Bhatia S, Flannery P, Lemma R, Hardie L, Schüller U, Venkataraman S, Hoffman LM, Dorris K, Levy JM, Hankinson TC, Handler M, Liu A, Foreman N, Vibhakar R, Jones K, Allen S, Zhang J, Baker SJ, Merchant TE, Orr BA, Green AL.

    Journal: Nat Commun

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