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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Association of Single-Nucleotide Variants in the human leukocyte antigen and other loci with childhood Hodgkin Lymphoma

    2022

    Citation: 5(8):e2225647

    Author(s): Chen C, Song N, Dong Q, Sun X, Li Z, Mulder HL, Easton J, Zhang J, Yasui Y, Bhatia S, Armstrong GT, Wang H, Ness KK, Hudson MM, Robison LL, Wang Z

    Journal: JAMA Netw Open

  • Body region-specific 3D age-scaling functions for scaling whole-body computed tomography anatomy for pediatric late effects studies.

    2022

    Citation: 8(2)5051

    Author(s): Gupta AC, Owens CA, Shrestha S, Lee C, Smith SA, Weathers RE, Netherton T, Balter PA, Kry SF, Followill DS, Griffin KT, Long JP, Armstrong GT, Howell RM.

    Journal: Biomed Phys Eng Express

  • Breast cancer screening among childhood cancer survivors treated without chest radiation: clinical benefits and cost-effectiveness.

    2022

    Citation: 114(2):235-244

    Author(s): Yeh JM, Lowry KP, Schechter CB, Diller LR, O’Brien G, Alagoz O, Armstrong GT, Hampton JM, Hudson MM, Leisenring W, Liu Q, Mandelblatt JS, Miglioretti DL, Moskowitz CS, Nathan PC, Neglia JP, Oeffinger KC, Trentham-Dietz A, Stout NK.

    Journal: J Natl Cancer Inst

  • Cohort Profile: Risk and risk factors for female breast cancer after treatment for childhood and adolescent cancer: an internationally pooled cohort

    2022

    Citation: 12(11):e065910

    Author(s): Wang Y, Kremer LCM, van Leeuwen FE, Armstrong GT, Leisenring W, de Vathaire F, Hudson MM, Kuehni CE, Arnold MA, Haddy N, Demoor-Goldschmidt C, Diallo I, Howell RM, Ehrhardt MJ, Moskowitz CS, Neglia JP, van der Pal HJH, Robison LL, Schaapveld M, Turcotte LM, Waespe N, Ronckers CM, Teepen JC

    Journal: BMJ Open

  • Development and validation of models to predict poor health-related quality of life among adult survivors of childhood cancer

    2022

    Citation: 5(8):2227225

    Author(s): Schulte F, Chen Y, Yasui Y, Ruiz ME, Leisenring WM, Gibson TM, Nathan PC, Oeffinger KC, Hudson MM, Armstrong GT, Robison LL, Krull KR, Huang I

    Journal: JAMA Netw Open

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