Newsletters

We publish the Long-Term Follow-Up Study newsletter three times a year. It includes:

Updates about the latest research
Stories about fellow childhood cancer survivors
Information about helpful resources
Interviews with health care providers and researchers

LTFU Newsletter | Winter/Spring 2025

LTFU Newsletter | Fall 2024

LTFU Newsletter | Summer 2024

LTFU Newsletter | Winter 2023/2024

LTFU Study Newsletter Summer 2023

Benefits of a healthy lifestyle
Primary care providers and survivors
Important study survey still available

LTFU Study Newsletter Spring 2023

Focus on heart health
CHIIP and SALSA: Two lifestyle interventions
Tools healthcare providers can use

LTFU Study Newsletter Fall 2022

What you should know about colorectal cancer and screening
International science and collaboration
LTFU ASPIRES Study: translating screening recommendations to action

Archives

Check out some of our newsletter updates throughout the years.

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2022
LTFU Study Newsletter Summer 2022
- HINT Study: Navigating health insurance
- How health insurance affects your health
- New follow-up survey with a focus on aging, survivors needs, and healthcare utilization
LTFU Study Newsletter Winter 2022
- LTFU Study siblings
- Cancer and families: Perspectives from psychology research
- New study survey will soon be available
2021
LTFU Study Newsletter Spring 2021
- LTFU SLEEPWELL Study for insomnia
- COVID-19 Vaccine
- LTFU Study is the model for a new national study
LTFU Study Newsletter Winter 2021
- LTFU Study: Year in review
- Pain and survivorship
- Follow-up survey update
2020
LTFU Study Newsletter Fall 2020
- A participant shares her story
- Survivorship in a pandemic
- Follow-up survey update
LTFU Study Newsletter Summer 2020
- Nursing profiles: A passion for survivorship
- Research Results: Fertility outcomes of childhood cancer survivors
- The LTFU Study Community
LTFU Study Newsletter Winter 2020
- Survivorship care plans
- Featured Resource: Imerman Angels survivorship mentors
- Research Results: The role of race and ethnicity in survivorship outcomes
2019
LTFU Study Newsletter Autumn 2019
- myLTFU: Your new personal study portal
- Participant input helps shape the LTFU Study
- Sleep, emotional distress, and health during survivorship
LTFU Study Newsletter Summer 2019
- More knowledge, more power
- What happens after your survey is returned?
- Skin cancer early detection practices
- Latest LTFU Study publications
LTFU Study Newsletter Winter 2019
- First mobile study launches
- LTFU participants, now partners for life
- Participant Advisory Council
- Latest results – survivorship and life satisfaction
2018
LTFU Study Newsletter Fall 2018
- Exercise and survivorship: How it helps your health
- Looking Forward: A survivor living life on his own terms
- Sam Watson and the Samfund
LTFU Study Newsletter Summer 2018
- Protecting survivors’ heart health
- Risk of breast cancer after radiation to the chest
- The LTFU Study community
LTFU Study Newsletter Winter 2018
- Survivorship and financial stress
- Exercise and Quality Diet After Leukemia: The EQUAL Study
- The LTFU Study in the news
2017
LTFU Study Newsletter Autumn 2017
- Advancing survivors' knowledge (ASK) about skin cancer
- Meeting survivors' health-related needs
- Looking Forward - A family founded on hope, resources to help survivors preserve fertility
LTFU Study Newsletter Spring 2017
- Shorter survey coming
- Founder receives medal of honor
- EMPOWER Study: Promoting breast cancer screening
- 2016 accomplishments
2016
LTFU Looking Forward August 2016
- A Circle of Giving
- Community Partners: Camp Mak-A-Dream
- Childen's Brain Tumor Foundation
LTFU Looking Forward April 2016
- Introducing a New LTFU Study Newsletter
- Unstoppable Billy Rivard
- mmunity Partners: Julia Stepenske and SurvivorVision.
2015
LTFU Study Newsletter Fall 2015
- Treatment Effects: Hearing and Eyesight
- Audiologic Evaluation
- Growing up with Hearing Loss
LTFU Brief Update July 2015
- Health Changes and Aging
LTFU Brief Update April 2015
- Exercise and Heart Health
LTFU Brief Update January 2015
- Treatment side effects for low-risk leukemia
2014
LTFU Study Newsletter Fall 2014
- Study Leadership Change
- Healthy Habits and Modifiable Risk Factors
- Making Healthy Changes
LTFU Brief Update June 2014
- Skin Cancer
LTFU Brief Update April 2014
- Cardiovascular Risk Factors
LTFU Brief Update February 2014
- Fertility
2013
LTFU Brief Update December 2013
- Radiation Exposure from Medical Scans
LTFU Study Newsletter Summer/Fall 2013
- Biologic samples and genetic research
- Study Update - Gene tests offer hope for future survivors
- Pharmacogenetics and the promise of personalized treatment
- What is a gene, anyway?
LTFU Brief Update June 2013
- Post-Traumatic Stress and Personal Growth
LTFU Brief Update April 2013
- Heart Health
LTFU Brief Update January 2013
- Employment
2012
LTFU Study Newsletter Summer/Fall 2012
- Fertility and Offspring of Childhood Cancer Survivors
- Childhood Cancer Survivors – A Practical Guide (3rd Edition)
- Save the Date for Survivors Day Webcast
LTFU Brief Update April 2012
- Fatigue, Sleep, and Mental Functioning
LTFU Brief Update January 2012
- Expanding the LTFU Study
2011
LTFU Study Newsletter Summer 2011
- Study Update: Independent living
- LIFT-OFF Resources
- Employment issues
- Notes from participants
- Web links
LTFU Brief Update April 2011
- Health Links
LTFU Brief Update January 2011
- Dental Health
2009
LTFU Study Newsletter Fall 2009
- Study Update: Physical activity among survivors
- Dr. Hudson's Comments: How can we help survivors move past roadblocks to
  physical activity?
- Notes from Survivors: A survivor shares how he uses his experiences to help others
  keep active.
- Educational Handout: How can survivors who have been inactive get moving again safely?
LTFU Study Newsletter Spring 2009
- Study Update: Focusing on Risks
- Dr. Hudson's Comments: Screening Tests
- An Interview with Dr. Armstrong: Siblings
- Notes from Survivors: A Sibling Reflects
2008
LTFU Study Newsletter Fall 2008
- Free Help to Quit Smoking
- Study Update: Emotional health
- Add new energy to your life
- Study Update: Fatigue and sleep problems
- Comments by Dr. Lonnie Zeltzer
- Notes from participants
LTFU Study Newsletter Spring 2008
- We Need Your Help
- Study Update: Complementary and Alternative Medicine
- Comments by Dr. Hudson
- Study Update: Physical Activity
- Spring into Action
- Notes from Participants
- Camp Mak-A-Dream Dates
2007
LTFU Study Newsletter Fall 2007
- General Health
- Second Cancers
- Reproductive Health
- Mobility
- Insurance Access
- Emotional Health
- Education
LTFU Study Newsletter Spring 2007
- Dr. Hudson's comments: How do such changes affect overall health?
- Survivor notes: How can you stay healthy in the face of such challenges?
2006
LTFU Study Newsletter Fall 2006
- Study update: Chronic health problems
- Assess your risk
- Camp Mak-A-Dream 2007
- Notes from study participants
LTFU Study Newsletter Spring 2006
- Update on Coordinating Center transition
- Study update: Risk of specific adult cancers
- Take control: Practice healthy habits
- Know the 7 warning signs of adult cancer
- Finding a doctor who understands
- Follow-up clinic to the rescue
- Using the COG screening guidelines
- Published findings
2005
LTFU Study Newsletter Fall 2005
- Study update: Physical limitations (comment by Dr. Hudson)
- A book for your doctor
- Resources for living with limitations
- Advocacy: You've got the power!
- About St. Jude Children's Research Hospital
LTFU Study Newsletter Spring 2005
- Rhabdomyosarcoma survivors - Dr. Hudson
- Know your family health history
- Update from ACOR discussion lists
- Notes from study participants
- ICCCPO parent and survivor conference
- INSERT: "My Family Health Portrait" (from U.S. Surgeon General's History Initiative)
2004
LTFU Study Newsletter Fall 2004
- Bone tumor survivors - Dr. Hudson
- Healthy moves
- Participant profile: Laura Feldman
- "Scope" study news
LTFU Study Newsletter Spring 2004
- LTFU in Newsweek
- Study update: Health status; cancer screening practices
- Your follow-up plan - Dr. Hudson
- New link on LTFU website: ACOR support groups
- View from a long-term survivor
- Notes from study participants
2003
LTFU Study Newsletter Fall 2003
- Study update: Obesity and leukemia
- Brian Price: world champion, leukemia survivor
- Camp Mak-a-Dream a success
- Physical changes after cancer - Dr. Hudson
- Weight loss tips
- Annual investigators' meeting
- LTFU publications to date
LTFU Study Newsletter Spring 2003
- Study update: Health care access
- Finding community care
- Social worker Sally Wiard
- Sally's insurance checklist
- Recommended resources
- Young adult camping conference
2002
LTFU Study Newsletter Fall 2002
- Dealing with emotions after childhood illness - Dr. Hudson
- Study update: Mental health
- Finding community mental health services (insert)
- Study investigator Dr. Brad Zebrack
- Survivors and siblings make history!
- Some famous cohort studies
LTFU Newsletter Winter/Spring 2002
- Meet the Carsons
- Study update: Pregnancy outcomes
- Having children after childhood cancer - Dr. Hudson
- VOLUNTEERS NEEDED
2001
LTFU Study Newsletter Summer 2001
- Meet Mark Miller
- Results of smoking study
- Benefits of quitting smoking
- Quit smoking: resources
- Risk factors for long-term effects: Osteoporosis; heart disease; breast cancer
LTFU Study Newsletter Winter 2001
- Patient Advocate Foundation
- Study update: Secondary cancers
- Thinking about secondary malignancies - Dr. Hudson
- Secondary cancers: Further reading
- Breast cancer after Hodgkin's
- Cancer genes and your family
2000
LTFU Study Newsletter Summer/Fall 2000
- Book: Survivors' guide
- Study update: Thyroid problems after Hodgkin's
- Understanding risk - Dr. Neglia
1999
LTFU Study Newsletter Fall 1999
- Staying healthy - Dr. Hudson
- 6 steps you can take for a healthier life
- Study update: Marriage and divorce
- The "Scope" study
- Letter from a participant: Donna Nave
1998
LTFU Study Newsletter Fall 1998
- Genes and the fight against cancer
- Literature watch
- What is hepatitis C?
1997
LTFU Study Newsletter Summer 1997
- Study stats
- Lit watch
- What about my kids? - Dr. Mulvihill
- Save your smile
- Please stay in touch with us
1996
LTFU Study Newsletter Summer 1996
- Insurance issues
- LTFU clinics
- Fertility in survivors of childhood illnesses
- You and your doctor

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Newsletters

LTFU Newsletter | Winter/Spring 2025

LTFU Newsletter | Fall 2024

LTFU Newsletter | Summer 2024

LTFU Newsletter | Winter 2023/2024

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