Newsletters

All newsletter files are in PDF format, which requires Adobe Acrobat software to open. Right click to open a document in a new window.

• LTFU Study Newsletter Summer 2022
  HINT Study: Navigating health insurance
  How health insurance affects your health 
  New follow-up survey with a focus on aging, survivors needs, and healthcare utilization 
  
• LTFU Study Newsletter Winter 2022
  LTFU Study siblings
  Cancer and families: Perspectives from psychology research
  New study survey will soon be available
• LTFU Study Newsletter Spring 2021
  LTFU SLEEPWELL Study for insomnia 
  COVID-19 Vaccine
  LTFU Study is the model for a new national study 
• LTFU Study Newsletter Winter 2021
  LTFU Study: Year in review
  Pain and survivorship
  Follow-up survey update 
• LTFU Study Newsletter Fall 2020
  A participant shares her story 
  Survivorship in a pandemic 
  Follow-up survey update 
• LTFU Study Newsletter Summer 2020
  Nursing profiles: A passion for survivorship
  Research Results: Fertility outcomes of childhood cancer survivors
  The LTFU Study Community
• LTFU Study Newsletter Winter 2020
  Survivorship care plans
  Featured Resource: Imerman Angels survivorship mentors
  Research Results: The role of race and ethnicity in survivorship outcomes
• LTFU Study Newsletter Autumn 2019
  myLTFU: Your new personal study portal
  Participant input helps shape the LTFU Study  
  Sleep, emotional distress, and health during survivorship 
• LTFU Study Newsletter Summer 2019
  More knowledge, more power
  What happens after your survey is returned?
  Skin cancer early detection practices
  Latest LTFU Study publications
• LTFU Study Newsletter Winter 2019
  First mobile study launches
  LTFU participants, now partners for life
  Participant Advisory Council
  Latest results – survivorship and life satisfaction
• LTFU Study Newsletter Fall 2018
  Exercise and survivorship: How it helps your health
  Looking Forward: A survivor living life on his own terms
  Sam Watson and the Samfund
• LTFU Study Newsletter Summer 2018
  Protecting survivors’ heart health
  Risk of breast cancer after radiation to the chest
  The LTFU Study community
• LTFU Study Newsletter Winter 2018
  Survivorship and financial stress
  Exercise and Quality Diet After Leukemia: The EQUAL Study
  The LTFU Study in the news
• LTFU Study Newsletter Autumn 2017
  Advancing survivors' knowledge (ASK) about skin cancer
  Meeting survivors' health-related needs
  Looking Forward - A family founded on hope, resources to help survivors preserve fertility
• LTFU Study Newsletter Spring 2017
  Shorter survey coming
  Founder receives medal of honor
  EMPOWER Study: Promoting breast cancer screening
  2016 accomplishments
• LTFU Looking Forward August 2016
  A Circle of Giving
  Community Partners: Camp Mak-A-Dream
  Childen's Brain Tumor Foundation 
  
• LTFU Looking Forward April 2016
  Introducing a New LTFU Study Newsletter
  Unstoppable Billy Rivard
  Community Partners: Julia Stepenske and SurvivorVision
• LTFU Study Newsletter Fall 2015
  Treatment Effects: Hearing and Eyesight
  Audiologic Evaluation
  Growing up with Hearing Loss
• LTFU Brief Update July 2015
  Health Changes and Aging
• LTFU Brief Update April 2015
  Exercise and Heart Health
• LTFU Brief Update January 2015
  Treatment side effects for low-risk leukemia
  
• LTFU Study Newsletter Fall 2014
  Study Leadership Change 
  Healthy Habits and Modifiable Risk Factors
  Making Healthy Changes
• LTFU Brief Update June 2014 
  Skin Cancer
• LTFU Brief Update April 2014 
  Cardiovascular Risk Factors
• LTFU Brief Update February 2014 
  Fertility
• LTFU Brief Update December 2013 
  Radiation Exposure from Medical Scans
• LTFU Study Newsletter Summer/Fall 2013 
  Biologic samples and genetic research 
  Study Update - Gene tests offer hope for future survivors 
  Pharmacogenetics and the promise of personalized treatment
  What is a gene, anyway?
• LTFU Brief Update June 2013 
  Post-Traumatic Stress and Personal Growth
• LTFU Brief Update April 2013 
  Heart Health
• LTFU Brief Update January 2013 
  Employment
• LTFU Study Newsletter Summer/Fall 2012 
  Fertility and Offspring of Childhood Cancer Survivors 
  Childhood Cancer Survivors – A Practical Guide (3rd Edition) 
  Save the Date for Survivors Day Webcast
• LTFU Brief Update April 2012
  Fatigue, Sleep, and Mental Functioning
  
• LTFU Brief Update January 2012
  Expanding the LTFU Study
  
• LTFU Study Newsletter Summer 2011
  Study Update: Independent living
  LIFT-OFF Resources
  Employment issues
  Notes from participants
  Web links
• LTFU Brief Update April 2011
  Health Links
• LTFU Brief Update January 2011
  Dental Health
• LTFU Study Newsletter Fall 2009
  Study Update: Physical activity among survivors
  Dr. Hudson's Comments: How can we help survivors move past roadblocks to 
  physical activity?
  Notes from Survivors: A survivor shares how he uses his experiences to help others 
  keep active. 
  Educational Handout: How can survivors who have been inactive get moving again safely?
• LTFU Study Newsletter Spring 2009
  Study Update: Focusing on Risks
  Dr. Hudson's Comments: Screening Tests 
  An Interview with Dr. Armstrong: Siblings 
  Notes from Survivors: A Sibling Reflects
• LTFU Study Newsletter Fall 2008 
  Free Help to Quit Smoking 
  Study Update: Emotional health 
  Add new energy to your life 
  Study Update: Fatigue and sleep problems 
  Comments by Dr. Lonnie Zeltzer 
  Notes from participants
• LTFU Study Newsletter Spring 2008
  We Need Your Help 
  Study Update: Complementary and Alternative Medicine 
  Comments by Dr. Hudson 
  Study Update: Physical Activity 
  Spring into Action 
  Notes from Participants 
  Camp Mak-A-Dream Dates
• LTFU Study Newsletter Fall 2007 
  General Health 
  Second Cancers 
  Reproductive Health 
  Mobility 
  Insurance Access 
  Emotional Health 
  Education
• LTFU Study Newsletter Spring 2007 
  Dr. Hudson's comments: How do such changes affect overall health? 
  Survivor notes: How can you stay healthy in the face of such challenges?
• LTFU Study Newsletter Fall 2006 
  Study update: Chronic health problems 
  Assess your risk 
  Camp Mak-A-Dream 2007 
  Notes from study participants
• LTFU Study Newsletter Spring 2006 
  Update on Coordinating Center transition 
  Study update: Risk of specific adult cancers 
  Take control: Practice healthy habits 
  Know the 7 warning signs of adult cancer 
  Finding a doctor who understands 
  Follow-up clinic to the rescue 
  Using the COG screening guidelines 
  Published findings
• LTFU Study Newsletter Fall 2005 
  Study update: Physical limitations (comment by Dr. Hudson)
  A book for your doctor 
  Resources for living with limitations 
  Advocacy: You've got the power! 
  About St. Jude Children's Research Hospital
• LTFU Study Newsletter Spring 2005 
  Rhabdomyosarcoma survivors - Dr. Hudson 
  Know your family health history 
  Update from ACOR discussion lists 
  Notes from study participants 
  ICCCPO parent and survivor conference 
  INSERT: "My Family Health Portrait" (from U.S. Surgeon General's History Initiative)
• LTFU Study Newsletter Fall 2004 
  Bone tumor survivors - Dr. Hudson 
  Healthy moves 
  Participant profile: Laura Feldman 
  "Scope" study news
• LTFU Study Newsletter Spring 2004 
  LTFU in Newsweek 
  Study update: Health status; cancer screening practices 
  Your follow-up plan - Dr. Hudson 
  New link on LTFU website: ACOR support groups 
  View from a long-term survivor 
  Notes from study participants
• LTFU Study Newsletter Fall 2003 
  Study update: Obesity and leukemia 
  Brian Price: world champion, leukemia survivor 
  Camp Mak-a-Dream a success 
  Physical changes after cancer - Dr. Hudson 
  Weight loss tips 
  Annual investigators' meeting 
  LTFU publications to date
• LTFU Study Newsletter Spring 2003 
  Study update: Health care access 
  Finding community care 
  Social worker Sally Wiard 
  Sally's insurance checklist 
  Recommended resources 
  Young adult camping conference
• LTFU Study Newsletter Fall 2002
  Dealing with emotions after childhood illness - Dr. Hudson 
  Study update: Mental health 
  Finding community mental health services (insert) 
  Study investigator Dr. Brad Zebrack 
  Survivors and siblings make history! 
  Some famous cohort studies
• LTFU Newsletter Winter/Spring 2002 
  Meet the Carsons 
  Study update: Pregnancy outcomes 
  Having children after childhood cancer - Dr. Hudson 
  VOLUNTEERS NEEDED
• LTFU Study Newsletter Summer 2001 
  Meet Mark Miller 
  Results of smoking study 
  Benefits of quitting smoking 
  Quit smoking: resources 
  Risk factors for long-term effects: Osteoporosis; heart disease; breast cancer
• LTFU Study Newsletter Winter 2001 
  Patient Advocate Foundation 
  Study update: Secondary cancers 
  Thinking about secondary malignancies - Dr. Hudson 
  Secondary cancers: Further reading 
  Breast cancer after Hodgkin's 
  Cancer genes and your family
• LTFU Study Newsletter Summer/Fall 2000 
  Book: Survivors' guide 
  Study update: Thyroid problems after Hodgkin's 
  Understanding risk - Dr. Neglia
• LTFU Study Newsletter Fall 1999 
  Staying healthy - Dr. Hudson 
  6 steps you can take for a healthier life 
  Study update: Marriage and divorce 
  The "Scope" study 
  Letter from a participant: Donna Nave
• LTFU Study Newsletter Fall 1998 
  Genes and the fight against cancer 
  Literature watch 
  What is hepatitis C?
• LTFU Study Newsletter Summer 1997 
  Study stats 
  Lit watch 
  What about my kids? - Dr. Mulvihill
  Save your smile 
  Please stay in touch with us
• LTFU Study Newsletter Summer 1996
  Insurance issues 
  LTFU clinics 
  Fertility in survivors of childhood illnesses 
  You and your doctor