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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Late complications of treatment for childhood pelvic sarcoma: A report from the Childhood Cancer Survivor Study (CCSS)

    2026

    Citation: 61(7):163117

    Author(s): Murphy AJ, Chen Y, Cameron DB, Geiger EJ, Ramsey D, Green DM, Howell RM, Kieran K, Krull KR, Meacham LR, Ness KK, Oeffinger KC, Yasui Y, Armstrong GT, Chow EJ, Weldon CB, Weil BR

    Journal: J Pediatr Surg

  • Neurocognitive impairment and financial hardship in adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study

    2026

    Citation: Epub Jan 31, 2026

    Author(s): Zheng DJ, Bhatia S, Mirzaei S, Aplenc R, Armstrong GT, Bona K, Brinkman TM, Brouwers P, Edelstein K, Getz K, Huang I, Kirchhoff AC, Mostoufi-Moab S, Park ER, Snyder C, Yabroff KR, Yasui Y, Krull K, Nathan PC

    Journal: J Natl Cancer Inst

  • Neurocognitive impairment and substance use in adult survivors of childhood cancer: A cross-sectional analysis from the Childhood Cancer Survivor Study

    2026

    Citation: Epub Apr 29, 2026

    Author(s): Webster R, Chambers EO, Qiu W, Dhaduk R, Wang L, Yasui Y, Yuan Y, Nathan PC, Leisenring WM, Armstrong GT, Howell R, Schulte T, Yalch M, Cordova M, Krull KR, Brinkman TM, Edelstein K.

    Journal: eClinicalMedicine

  • Opioid limiting law and opioid prescriptions among Medicaid-enrolled survivors of childhood cancer

    2026

    Citation: In Press

    Author(s): Hu X, Klosky JL, Srivastava DK, Zhang Z, Brinkman TM, Krull K, Nathan PC, Snyder C, Armstrong GT, Nolan V, Yasui Y, Castellino SM, Ji X

    Journal: J Natl Cancer Inst

  • Potential for risk reduction of chronic health conditions through lifestyle in childhood cancer survivors

    2026

    Citation: In Press

    Author(s): Onerup A, Liu Q, Izumi S, Dixon SB, Howell RM, Ehrhardt MJ, Joffe L, Turcotte LM, Srivastava D, Brinkman TM, Oeffinger KC, Snyder C, Nathan PC, Yasui Y, Armstrong GT, Ness KK

    Journal: Nat Commun

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