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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Prediction of breast cancer risk for adolescents and young adults with Hodgkin lymphoma

    2025

    Citation: 117(4):619-628

    Author(s): Roberti S, van Leeuwen FE, Diallo I, de Vathaire F, Schaapveld M, Leisenring WM, Howell RM, Armstrong GT, Moskowitz CS, Smith SA, Aleman BMP, Krul IM, Russell NS, Pfeiffer RM, Hauptmann M

    Journal: J Natl Cancer Inst

  • Melanoma among adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study

    2025

    Citation: 43(10):1219-1228

    Author(s): Rotz SJ, Stratton K, Leisenring WM, Smith SA, Howell RM, Bates JE, Pappo AS, Neglia JP, Armstrong GT, Turcotte LM

    Journal: J Clin Oncol

  • Accelerated aging in survivors of childhood cancer-early onset and excess risk of chronic conditions

    2025

    Citation: 11(5):535-543

    Author(s): Yeh JM, Ward ZJ, Stratton KL, McMahon MV, Taylor CS, Armstrong GT, Chow EJ, Hudson MM, Morton LM, Oeffinger KC, Diller LR, Leisenring WM

    Journal: JAMA Oncol

  • Temporal trends of subsequent central nervous system malignancies among survivors of childhood cancer

    2025

    Citation: 117(5):1036-1045

    Author(s): Galvin RT, Chen Y, Yuan Y, Cooney T, Howell R, Smith S, Arnold MA, Conces M, Leisenring W, Armstrong GT, Neglia JP, Turcotte LM

    Journal: J Natl Cancer Inst

  • TTN and BAG3 in cancer therapy-related cardiomyopathy among long-term survivors of childhood cancer

    2025

    Citation: 8(6):e2515793

    Author(s): Neupane A, Petrykey K, Li K, French J, Zhou X, Wang J, Im C, Dixon SB, Ehrhardt MJ, Mulrooney DA, Jefferies JL, Gramatges MM, Chow EJ, Bhatia S, Robison LL, Ness KK, Hudson MM, Burridge PW, Armstrong GT, Yasui Y, Sapkota Y

    Journal: JAMA Newt Oncol

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