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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Accelerated aging in survivors of childhood cancer-early onset and excess risk of chronic conditions

    2025

    Citation: 11(5):535-543

    Author(s): Yeh JM, Ward ZJ, Stratton KL, McMahon MV, Taylor CS, Armstrong GT, Chow EJ, Hudson MM, Morton LM, Oeffinger KC, Diller LR, Leisenring WM

    Journal: JAMA Oncol

  • Temporal trends of subsequent central nervous system malignancies among survivors of childhood cancer

    2025

    Citation: 117(5):1036-1045

    Author(s): Galvin RT, Chen Y, Yuan Y, Cooney T, Howell R, Smith S, Arnold MA, Conces M, Leisenring W, Armstrong GT, Neglia JP, Turcotte LM

    Journal: J Natl Cancer Inst

  • Comprehensive assessment of sexual function in male survivors of childhood cancer: A report from the Childhood Cancer Survivor Study (CCSS)

    2025

    Citation: 131(14):e35967

    Author(s): Marchak JG, Seidel KD, Cherven BO, Klosky JL, Ritenour CWM, Leisenring WM, Sklar CA, Ford JS, Krull KR, Robison LL, Armstrong GT, Meacham LR

    Journal: Cancer

  • Treatment, toxicity, and mortality after subsequent breast cancer in female survivors of childhood cancer

    2025

    Citation: 16(1):3088

    Author(s): Im C, Hasan H, Steen E, Monick S, Rader RK, Sheade J, Wolfe H, Lu Z, Spector LG, McDonald AJ, Nolan V, Arnold MA, Conces MR, Moskowitz CS, Henderson TO, Robison LL, Armstrong GT, Yasui Y, Nanda R, Oeffinger KC, Neglia JP, Blaes A, Turcotte LM

    Journal: Nat Commun

  • Prediction of breast cancer risk for adolescents and young adults with Hodgkin lymphoma

    2025

    Citation: 117(4):619-628

    Author(s): Roberti S, van Leeuwen FE, Diallo I, de Vathaire F, Schaapveld M, Leisenring WM, Howell RM, Armstrong GT, Moskowitz CS, Smith SA, Aleman BMP, Krul IM, Russell NS, Pfeiffer RM, Hauptmann M

    Journal: J Natl Cancer Inst

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