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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Impact of risk-stratified therapy on health status in survivors of childhood Acute Lymphoblastic Leukemia: a report from the Childhood Cancer Survivor Study.

    2022

    Citation: 31(1):150-160

    Author(s): Dixon SB, Chen Y, Yasui Y, Pui C, Hunger SP, Silverman LB, Ness KK, Green DM, Howell RM, Leisenring WM, Kadan-Lottick NS, Krull KR, Oeffinger KC, Neglia JP, Hudson MM, Robison LL, Mertens LL, Armstrong GT, Nathan PC.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Implementing a mHealth intervention to increase colorectal cancer screening among high-risk cancer survivors treated with radiotherapy in the Childhood Cancer Survivor Study (CCSS).

    2022

    Citation: 22(1):691

    Author(s): Henderson TO, Bardwell JK, Moskowitz CS, McDonald A, Vukadinovich C, Lam H, Curry M, Oeffinger KC, Ford JS, Elkin EB, Nathan PC, Armstrong GT, Kim K

    Journal: BMC Health Serv Res

  • Pooled analysis of meningioma risk following treatment for childhood cancer

    2022

    Citation: 8(12):1756-1764

    Author(s): Withrow DR, Anderson H, Armstrong GT, Hawkins M, Journy N, Neglia JP, de Vathaire F, Tucker MA, Inskip P, Brenner A, Stovall M, Diallo I, Berrington de Gonzalez A, Veiga LHS

    Journal: JAMA Oncol

  • Short NK- and Naïve T-Cell telomere length is associated with thyroid cancer in childhood cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2022

    Citation: 31(2):453-460

    Author(s): Man T, Aubert G, Richard MA, LeJeune W, Hariri E, Goltsova T, Gaikwad A, Chen Y, Whitton J, Leisenring WM, Arnold MA, Neglia JP, Yasui Y, Robison LL, Armstrong GT, Bhatia S, Gramatges MM.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Subsequent malignant neoplasms in the Childhood Cancer Survivor Study: Occurrence of cancer types in which human papillomavirus is an established etiologic risk factor.

    2022

    Citation: 128(2):373-82

    Author(s): Henderson TO, Fowler B, Hamann H, Nathan PC, Whitton J, Leisenring WM, Oeffinger KC, Neglia JP, Turcotte LM, Arnold MA, Conces MR, Howell RM, Robison LL, Armstrong GT, Alexander KA.

    Journal: Cancer

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