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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Melanoma among adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study

    2025

    Citation: 43(10):1219-1228

    Author(s): Rotz SJ, Stratton K, Leisenring WM, Smith SA, Howell RM, Bates JE, Pappo AS, Neglia JP, Armstrong GT, Turcotte LM

    Journal: J Clin Oncol

  • Mortality after colorectal cancer among survivors of childhood cancer

    2025

    Citation: In Press

    Author(s): Major A, Chou J, Lam H, Kim KE, Turcotte LM, Leisenring W, Yasui Y, Neglia JP, Curry M, Howell RM, Oeffinger KC, Hodgson D, Nathan PC, Armstrong GT, Moskowitz CS, Henderson TO

    Journal: J Natl Cancer Inst

  • TTN and BAG3 in cancer therapy-related cardiomyopathy among long-term survivors of childhood cancer

    2025

    Citation: 8(6):e2515793

    Author(s): Neupane A, Petrykey K, Li K, French J, Zhou X, Wang J, Im C, Dixon SB, Ehrhardt MJ, Mulrooney DA, Jefferies JL, Gramatges MM, Chow EJ, Bhatia S, Robison LL, Ness KK, Hudson MM, Burridge PW, Armstrong GT, Yasui Y, Sapkota Y

    Journal: JAMA Newt Oncol

  • Body mass index, physical activity, and subsequent neoplasm risk among childhood cancer survivors

    2025

    Citation: Epub Jun 5, 2025

    Author(s): Joffe L, Mirzaei S, Bhatia S, Darji H, Ness KK, Onerup A, Ladas EJ, Im C, Lupo PJ, Oeffinger KC, Friedman DN, Howell RM, Conces MR, Arnold MA, Armstrong GT, Neglia JP, Yasui Y, Kadan-Lottick NS, Turcotte L

    Journal: JAMA Oncol

  • DNA damage response and repair genes and anthracycline-induced cardiomyopathy in childhood cancer survivors: a report from the Children’s Oncology Group and the Childhood Cancer Survivor Study

    2025

    Citation: 18(2):e004813

    Author(s): Wang X, Singh P, Cejas RB, Zhou L, Sharafeldin N, Trainor PJ, Landier W, Cheng C, Hageman L, Wang F, Sapkota Y, Yasui Y, Hudson MM, Chow EJ, Armenian SH, Neglia JP, Hawkins DS, Ginsburg JP, Burridge PW, Armstrong GT, Bhatia S.

    Journal: Circ Genom Precis Med

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