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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • TTN and BAG3 in cancer therapy-related cardiomyopathy among long-term survivors of childhood cancer

    2025

    Citation: 8(6):e2515793

    Author(s): Neupane A, Petrykey K, Li K, French J, Zhou X, Wang J, Im C, Dixon SB, Ehrhardt MJ, Mulrooney DA, Jefferies JL, Gramatges MM, Chow EJ, Bhatia S, Robison LL, Ness KK, Hudson MM, Burridge PW, Armstrong GT, Yasui Y, Sapkota Y

    Journal: JAMA Newt Oncol

  • DNA damage response and repair genes and anthracycline-induced cardiomyopathy in childhood cancer survivors: a report from the Children’s Oncology Group and the Childhood Cancer Survivor Study

    2025

    Citation: 18(2):e004813

    Author(s): Wang X, Singh P, Cejas RB, Zhou L, Sharafeldin N, Trainor PJ, Landier W, Cheng C, Hageman L, Wang F, Sapkota Y, Yasui Y, Hudson MM, Chow EJ, Armenian SH, Neglia JP, Hawkins DS, Ginsburg JP, Burridge PW, Armstrong GT, Bhatia S.

    Journal: Circ Genom Precis Med

  • Intolerance of uncertainty, psychological symptoms, and pain in long-term childhood cancer survivors: a report from the Childhood Cancer Survivor Study

    2025

    Citation: Epub Jul 23, 2025

    Author(s): Alberts NM, Stratton KL, Leisenring WM, Pizzo A, Lamoureux E, Alschuler K, Flynn J, Krull KR, Jibb LA, Nathan PC, Olgin JE, Stinson JN, Armstrong GT

    Journal: J Cancer Surviv

  • Assessing the effect of virtual navigation interventions to improve health insurance literacy and decrease financial burden in cancer survivors: The HINT II study protocol

    2025

    Citation: 154:107952

    Author(s): Park ER, Kirchhoff AC, Mitchell CO, Durieux N, Foor A, Kuhlthau K, Perez GK, Ards L, Alston S, Armstrong GT, Vaca Lopez PL, McDonald A, Nolan VG, Levy DE, Leisenring WM, Galbraith AA, Nathan PC, Vukadinovich C, Cooper CL, Donelan K

    Journal: Contemp Clin Trials

  • Basal cell carcinoma risk prediction in survivors of childhood cancer

    2025

    Citation: Epub Aug 20, 2025

    Author(s): Im C, Boull C, Lu Z, Liao K, Hasan H, Xu L, Sapkota Y, Howell RM, Arnold MA, Conces MR, Housten AJ, Gebauer J, Langer T, Teepen JC, Kremer LCM, Constine LS, Yasui Y, Hudson MM, Ness KK, Armstrong GT, Neglia JP, Yuan Y, Turcotte LM

    Journal: J Natl Cancer Inst

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