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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Temporal changes in treatment and late mortality and morbidity in adult survivors of childhood Glioma: a report from the Childhood Cancer Survivor Study

    2024

    Citation: 5(4):590-600

    Author(s): De Blank PMK, Lange KR, Xing M, Mirzaei Salehabadi S, Srivastava D, Brinkman TM, Ness KK, Oeffinger KC, Neglia J, Krull KR, Nathan PC, Howell R, Turcotte LM, Leisenring W, Armstrong GT, Okcu MF, Bowers DC

    Journal: Nat Cancer

  • Financial hardship and neighborhood socioeconomic disadvantage in long-term childhood cancer survivors

    2024

    Citation: 8(3):pkae033

    Author(s): Fauer AJ, Qiu W, Huang IC, Ganz PA, Casillas JN, Yabroff RY, Armstrong GT, Leisenring W, Howell R, Howell CR, Kirchhoff AC, Yasui Y, Nathan PC

    Journal: JNCI Cancer Spectr

  • Mortality after major cardiovascular events in survivors of childhood cancer

    2024

    Citation: 83(8):827-838

    Author(s): Bottinor W, Im C, Doody DR, Armenian SH, Arynchyn A, Hong B, Howell RM, Jacobs DR, Ness KK, Oeffinger KC, Reiner AP, Armstrong GT, Yasui Y, Chow EJ

    Journal: J Am Coll Cardiol

  • Financial hardship among siblings of long-term survivors of childhood cancer: a Childhood Cancer Survivor Study report

    2024

    Citation: 130(7):1125-1136

    Author(s): Ohlsen TJD, Wang H, Buchbinder D, Huang I, Desai AD, Zheng Z, Kirchhoff AC, Park ER, Krull K, Conti RM, Yasui Y, Leisenring W, Armstrong GT, Yabroff KR, Nathan PC, Chow EJ

    Journal: Cancer

  • Job lock among survivors of childhood cancer and their spouses post Affordable Care Act implementation: A Childhood Cancer Survivor Study brief report

    2024

    Citation: 71(2):e30790

    Author(s): Waters AR, Liu Q, Ji X, Yasui Y, Yabroff KR, Conti RM, Henderson T, Huang I, Leisenring W, Armstrong GT, Nathan PC, Park E, Kirchhoff AC

    Journal: Pediatr Blood Cancer

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