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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Integrating genetic predictors into subsequent breast cancer risk prediction in survivors of childhood cancer

    2026

    Citation: Epub Sep 9, 2026

    Author(s): Srinivasan A, Wang J, Matt G, Mills LJ, Sapkota Y, Wang Z, Yang T, Neglia JP, Turcotte LM, Hudson MM, Ness KK, Armstrong GT, Zheng J, Robison LL, Zhou X, Yasui Y, Im C

    Journal: J Natl Cancer Inst

  • Late complications of treatment for childhood pelvic sarcoma: A report from the Childhood Cancer Survivor Study (CCSS)

    2026

    Citation: 61(7):163117

    Author(s): Murphy AJ, Chen Y, Cameron DB, Geiger EJ, Ramsey D, Green DM, Howell RM, Kieran K, Krull KR, Meacham LR, Ness KK, Oeffinger KC, Yasui Y, Armstrong GT, Chow EJ, Weldon CB, Weil BR

    Journal: J Pediatr Surg

  • Longitudinal evaluation of sleep disturbances in survivors of childhood cancer: A report from the Childhood Cancer Survivor Study (CCSS)

    2026

    Citation: Epub Aug 8, 2026

    Author(s): Daniel LC, Wang H, Brinkman TM, Ruble K, Zhou ES, Palesh O, Howell R, Mulrooney DA, Crabtree VM, Mostoufi-Moab S, Oeffinger K, Neglia J, Yasui Y, Armstrong GT, Krull K

    Journal: J Cancer Surviv

  • Male survivors of childhood cancer and perceptions of sexual dysfunction risk: A report from the Childhood Cancer Survivor Study

    2026

    Citation: 132(18):e70599

    Author(s): Demedis J, Stratton KL, Leisenring WM, Brinkman TM, Howell R, Armstrong GT, Meacham LR, Chow EJ, Gilleland Marchak J

    Journal: Cancer

  • Modeling long-term mortality and morbidity in pediatric Hodgkin lymphoma survivors after reduced radiotherapy exposure

    2026

    Citation: Epub Jun 12, 2026

    Author(s): Rogers JR, Ward ZJ, Stratton KL, Leisenring WM, Taylor SC, Armstrong GT, Chow EJ, Feraco AM, Howell RM, Hudson MM, McMahon M, Morton LM, Oeffinger KC, Smith SA, Diller L, Yeh JM

    Journal: J Natl Cancer Inst

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