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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Potential for risk reduction of chronic health conditions through lifestyle in childhood cancer survivors

    2026

    Citation: 17(1):4605

    Author(s): Onerup A, Liu Q, Izumi S, Dixon SB, Howell RM, Ehrhardt MJ, Joffe L, Turcotte LM, Srivastava D, Brinkman TM, Oeffinger KC, Snyder C, Nathan PC, Yasui Y, Armstrong GT, Ness KK

    Journal: Nat Commun

  • SMARCAL1 is a new osteosarcoma predisposition gene

    2026

    Citation: 118(6):1120-1125

    Author(s): Rafati M, Guenther LM, Egolf LE, Gianferante DM, Kim J, Wang K, Zhu B, Spector LG, Anderson N, Janeway KA, Barkauskas DA, Hawkins DS, Patiño-Garcia A, Lupo PJ, Scheurer ME, Morton L, Armstrong GT, Sapkota Y, Gramatges MM, Serra M, Hattinger C, Scotlandi K, Andrulis IL, Wunder JS, Ballinger ML, Thomas DM, Yeager M, Dean M, Stewart DR, Vogt A, Liu J, Hicks BD, Huang W, Landi MT, Lori A, Diver WR, Savage SA, Chanock SJ, Mirabello L

    Journal: J Natl Cancer Inst

  • Therapy-related mutational signatures in subsequent neoplasms among survivors of childhood cancer

    2026

    Citation: Epub Apr 19, 2026

    Author(s): Brady SW, Arnold MA, Wang M, Alsallaq R, Dong L, Khan MA, Yang W, Stratton KL, Liu Q, Chen Y, Plyler E, Steele JA, Powers BB, Rosenfeld D, Edmonson MN, Feng Y, Terekhanova NV, Hagiwara K, Arunachalam S, Mulder HL, Srivastava DK, Rusch M, Nolan V, McDonald A, Sapkota Y, Gramatges MM, Turcotte LM, Im C, Howell RM, Easton J, Ma X, Wang Z, Leisenring WM, Conces M, Neglia JP, Yasui Y, Bhatia S, Ellison DW, Zhang J, Armstrong GT

    Journal: Cancer Discov

  • Accelerated aging in survivors of childhood cancer-early onset and excess risk of chronic conditions

    2025

    Citation: 11(5):535-543

    Author(s): Yeh JM, Ward ZJ, Stratton KL, McMahon MV, Taylor CS, Armstrong GT, Chow EJ, Hudson MM, Morton LM, Oeffinger KC, Diller LR, Leisenring WM

    Journal: JAMA Oncol

  • Assessing the effect of virtual navigation interventions to improve health insurance literacy and decrease financial burden in cancer survivors: The HINT II study protocol

    2025

    Citation: 154:107952

    Author(s): Park ER, Kirchhoff AC, Mitchell CO, Durieux N, Foor A, Kuhlthau K, Perez GK, Ards L, Alston S, Armstrong GT, Vaca Lopez PL, McDonald A, Nolan VG, Levy DE, Leisenring WM, Galbraith AA, Nathan PC, Vukadinovich C, Cooper CL, Donelan K

    Journal: Contemp Clin Trials

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