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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Mortality after colorectal cancer among survivors of childhood cancer

    2025

    Citation: In Press

    Author(s): Major A, Chou J, Lam H, Kim KE, Turcotte LM, Leisenring W, Yasui Y, Neglia JP, Curry M, Howell RM, Oeffinger KC, Hodgson D, Nathan PC, Armstrong GT, Moskowitz CS, Henderson TO

    Journal: J Natl Cancer Inst

  • Therapy-related mutational signatures in subsequent neoplasms among survivors of childhood cancer

    2025

    Citation: In Press

    Author(s): Brady SW, Arnold MA, Wang M, Alsallaq R, Dong L, Khan MA, Yang W, Stratton KL, Liu Q, Chen Y, Plyler W, Steele JA, Powers BB, Rosenfeld D, Edmonson MN, Arunachalam S, Mulder HL, Srivastava DK, Rusch M, Nolan V, McDonald A, Sapkota Y, Gramatges MM, Turcotte LM, Im C, Howell RM, Easton J, Wang Z, Leisenring WM, Conces M, Neglia JP, Yasui Y, Bhatia S, Zhang J, Armstrong GT

    Journal: Cancer

  • Accelerated aging in survivors of childhood cancer-early onset and excess risk of chronic conditions

    2025

    Citation: 11(5):535-543

    Author(s): Yeh JM, Ward ZJ, Stratton KL, McMahon MV, Taylor CS, Armstrong GT, Chow EJ, Hudson MM, Morton LM, Oeffinger KC, Diller LR, Leisenring WM

    Journal: JAMA Oncol

  • Temporal trends of subsequent central nervous system malignancies among survivors of childhood cancer

    2025

    Citation: 117(5):1036-1045

    Author(s): Galvin RT, Chen Y, Yuan Y, Cooney T, Howell R, Smith S, Arnold MA, Conces M, Leisenring W, Armstrong GT, Neglia JP, Turcotte LM

    Journal: J Natl Cancer Inst

  • Fear of cancer recurrence in adult survivors of childhood cancer

    2024

    Citation: 7(10):e2436144

    Author(s): Pizzo A, Leisenring WM, Stratton KL, Lamoureux E, Flynn JS, Alschuler K, Krull KR, Jibb LA, Nathan PC, Olgin JE, Stinson JN, Armstrong GT, Alberts NM

    Journal: JAMA Netw Open

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