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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Alcohol consumption behaviors and neurocognitive dysfunction and emotional distress in adult survivors of childhood cancer: A report from the Childhood Cancer Survivor Study.

    2019

    Citation: 114(2):226-235

    Author(s): Brinkman TM, Lown EA, Li C, Olsson IT, Marchak JG, Stuber ML, Vuotto S, Srivastava D, Nathan PC, Leisenring W, Armstrong GT, Robison LL, Krull KR.

    Journal: Addiction

  • Mortality after breast cancer among adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2019

    Citation: 37(24):2120-2130

    Author(s): Moskowitz CS, Chou JF, Neglia JP, Partridge AH, Howell RM, Diller LR, Novetsky Friedman D, Barnea D, Morton LM, Turcotte LM, Arnold MA, Leisenring WM, Armstrong GT, Robison LL, Oeffinger KC, Henderson TO.

    Journal: J Clin Oncol

  • Endocrine and metabolic disorders in survivors of childhood cancer and health-related quality of life and physical activity.  

    2019

    Citation: 104(11):5183-5194

    Author(s): Pradhan KR, Chen Y, Moustoufi-Moab S, Krull K, Oeffinger KC, Sklar C, Armstrong GT, Ness KK, Robison LL, Yasui Y, Nathan PC.

    Journal: J Clin Endocrinol Meta

  • Solid organ transplantation after treatment for childhood cancer: a retrospective cohort analysis from the Childhood Cancer Survivor Study.

    2019

    Citation: 20(10):1420-1431

    Author(s): Dietz AC, Seidel K, Leisenring WM, Mulrooney DA, Tersak JM, Glick RD, Burnweit CA, Green DM, Diller LR, Smith SA, Howell RM, Stovall M, Armstrong GT, Oeffinger KC, Robison LL, Termuhlen AM.

    Journal: Lancet Oncol

  • Genome-wide association study in irradiated childhood cancer survivors identifies HTR2A for subsequent basal cell carcinoma.

    2019

    Citation: 139(9):2042-2045

    Author(s): Sapkota Y, Turcotte LM, Ehrhardt MJ, Howell RM, Arnold MA, Wilson CL, Leisenring W, Wang Z, Sampson J, Dagnall CL, Karlins E, Li SA, Hicks BD, Weathers R, Smith SA, Shelton K, Liu Q, Tucker MA, Chanock SJ, Zhang J, Hudson MM, Neglia JP, Armstrong GT, Robison LL, Morton L, Bhatia S, Yasui Y.

    Journal: J Invest Dermatol

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