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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Functional outcomes and social attainment in Asian/Pacific Islander childhood cancer survivors in the United States: a report from the Childhood Cancer Survivor Study.

    2021

    Citation: 30(12):2244-2255

    Author(s): Sato S, Li N, Dixon S, MD, Kato M, Zhang H, Li CK, Howell RM, Leisenring WM, Bhatia S, Oeffinger KC, Armstrong GT, Yasui Y, Krull KR, Cheung YT.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Generalizability of “GWAS hits” in clinical populations: lessons from childhood cancer survivors.

    2021

    Citation: 107(4):636-653

    Author(s): Im C, Qin N, Wang Z, Qui W, Howell CR, Sapkota Y, Moon W, Chemaitilly M, Gibson Tm, Mulrooney DA, Ness KK, Wilson CL, Morton LM, Armstrong GT, Bhatia S, Zhang J, Hudson MM, Robison LL, Yasui Y.

    Journal: Am J Hum Genet

  • Genetic variation in body mass index of adult survivors of childhood acute lymphoblastic leukemia: a report from the Childhood Cancer Survivor Study and St. Jude Lifetime Cohort.

    2021

    Citation: 127(2):310-318

    Author(s): Richard MA, Brown AL, Belmont JMW, Scheurer ME, Arroyo VM, Foster KL, Kern KD, Hudson MM, Leisenring WM, Okcu MF, Sapkota Y, Yasui Y, Morton LM, Chanock SJ, Robison LL, Armstrong GT, Bhatia S, Oeffinger KC, Lupo PJ, Kamdar KY.

    Journal: Cancer

  • Genome-wide association studies reveal novel locus with sex-/therapy-specific fracture risk effects in childhood cancer survivors.

    2021

    Citation: 36(4):685-695

    Author(s): Im C, Li N, Moon W, Liu Q, Morton LM, Leisenring WM, Howell RM, Chow EJ, Sklar CA, Wilson CL, Wang Z, Sapkota Y, Chemaitilly W, Ness KK, Hudson MM, Robison LL, Bhatia S, Armstrong GT, Yasui Y.

    Journal: J Bone Miner Res

  • Impact of risk-adapted therapy for pediatric Hodgkin Lymphoma on risk of long-term morbidity: a report from the Childhood Cancer Survivor Study.

    2021

    Citation: 39(20):2266-2275

    Author(s): Oeffinger KC, Stratton KL, Hudson MM, Leisenring WM, Henderson TO, Howell RM, Wolden SL, Constine LS, Diller LR, Sklar CA, Nathan PC, Castellino SM, Barnea D, Smith SA, Hutchinson RJ, Armstrong GT, Robison LL.

    Journal: J Clin Oncol

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