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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Underdiagnosis and undertreatment of modifiable cardiovascular risk factors among survivors of childhood cancer.

    2022

    Citation: 11(12):e024735

    Author(s): Chow EJ, Chen Y, Armstrong GT, Baldwin L, Cai CR, Gibson TM, Hudson MM, McDonald A, Nathan PC, Olgin JE, Syrjala KL, Tonorezos ES, Oeffinger KC, Yasui Y

    Journal: J Am Heart Assoc

  • What are risk factors for and outcomes of late amputation after treatment for lower extremity sarcoma: a Childhood Cancer Survivor Study report

    2022

    Citation: 481(3):526-538

    Author(s): Geiger EJ, Liu W, Srivastava DK, Bernthal NM, Weil BR, Yasui Y, Ness KK, Krull KR, Goldsby RE, Oeffinger KC, Robison LL, Dieffenbach BV, Weldon C, Gebhardt MC, Howell R, Murphy A, Leisenring WM, Armstrong GT, Chow EJ, Wustrack RL

    Journal: Clin Orthop Relat Res

  • Development and validation of a population-based anatomical colorectal model for radiation dosimetry in late effects studies of survivors of childhood cancer

    2022

    Citation: 176:118-126

    Author(s): Owens CA, Rigaud B, Ludmir EB, Gupta AC, Shrestha S, Paulino AC, Smith SA, Peterson CB, Kry SF, Lee C, Henderson TO, Armstrong GT, Brock KK, Howell RM

    Journal: Radiother Oncol

  • A comparison of late mortality among survivors of childhood cancer in the United States and United Kingdom.

    2021

    Citation: 113(5):562-571

    Author(s): Fidler-Benaoudia MM, Oeffinger KC, Yasui Y, Robsion LL, Winter DL, Reulen RC, Leisenring WM, Chen Y, Armstrong GT, Hawkins MM.

    Journal: J Natl Cancer Inst

  • Clinical and genetic risk factors for radiation-associated ototoxicity: a report from the Childhood Cancer Survivor Study and the St. Jude Lifetime cohort.

    2021

    Citation: 127(21):4091-4102

    Author(s): Trendowski MR, Baedke J, Sapkota Y, Travis LB, Zhang X, Charif OE, Wheeler HE, Leisenring W, Robison LL, Hudson MM, Morton L, Oeffinger KC, Howell RM, Armstrong GT, Bhatia S, Dolan ME.

    Journal: Cancer

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