Websites

This list provides links to useful, reliable information about childhood cancer survivorship. Resources for health care providers are also included.

Topics

General resources

Teen Cancer America

National Cancer Institute, Office of Cancer Survivorship

National Cancer Institute, Patient Information
Information on cancer topics related to the late effects of cancer treatment

Survivorship During and After Treatment (American Cancer Society)

Life After Cancer (St. Jude Children's Research Hospital)

Life After Treatment (LIVESTRONG Foundation)

National Coalition of Cancer Survivorship

NCCS Cancer Survivor Toolbox
Skill-development for survivors, including finding the information you need, being assertive in your communications, and standing up for your rights.

Cancer.Net (American Society of Clinical Oncology)
Accurate, up-to-date information for survivors

Survivorship clinics

Children's Oncology Group
Late effects services for survivors within Children’s Oncology Group member institutions

Survivorship care plans

Introduction to Long-Term Follow-Up (Children’s Oncology Group HealthLinks)
English (pdf)
Spanish (pdf)

SMART ALACC
Adults Living After Childhood Cancer

Health

HealthLinks (Children’s Oncology Group)
Information for survivors on nearly 50 topics related to the late-effects of cancer treatment, in English and Spanish.

Be healthy after treatment (American Cancer Society)

American Institute of Cancer Research
Information about nutrition and physical activity for survivors

MyFitnessPal
Free app for tracking food and activity

New Mouth
Oral health education developed by oral health providers

Alcohol Rehab Help

Addictionresource.net

Addiction Guide

Sun safety

Skin Cancer Foundation
Information about sun protection and early detection of skin cancer

American Cancer Society
Information on sun exposure and cancer, sun protection, and how to perform a skin self-exam

Skin Cancer Awareness Guide

Guide To Skin Cancer Prevention

Tobacco/smoking cessation

Get Help Quitting Tobacco (American Cancer Society)

Smoke-free.gov
Online cessation resources

National Cancer Institute Quitline (NCI)
877-44U-QUIT (877-448-7848) (English and Spanish)
Telephone information and support

American Lung Association

Centers for Disease Control (CDC)
1-800-784-8669 (1-800-QUIT-NOW)

Early Screening for Lung Cancer

Emotional wellbeing

Emotional issues after childhood cancer (Children’s Oncology Group HealthLinks)
English (pdf)
Spanish (pdf)

Cancer Care
Information about counseling and support

Anxiety and Depression Association

Live Another Day

Detox Local*
*We have no experience with the specific centers and cannot vouch for their quality of care

Fertility and reproductive issues

Female Health Issues
English (pdf)
Spanish (pdf)

Male Health Issues
English (pdf)
Spanish (pdf)

Fertility information and resources (LIVESTRONG Foundation)

Fertility Scout (Alliance for Fertility Preservation)
Free tool to find fertility preservation services by geographic area

Oncofertility Consortium (Northwestern University)

Adoption

Insurance

Finding and paying for health care (Children’s Oncology Group Healthlinks)
English (pdf)
Spanish (pdf)

Affordable Health Insurance Options

Financial

The Samfund
Financial assistance and free online support for young adults facing financial challenges because of cancer

Survivorvision
"Textbook Scholarships" to support pediatric cancer patient/survivors pursuing a college education

Resources to help survivors succeed in college (Affordable Colleges Online)

Education

Educational Issues (Children's Oncology Group Healthlinks)
English (pdf)
Spanish (pdf)

Educating the Child with Cancer: A Guide for Parents and Teachers (American Childhood Cancer Organization)

How to Get an IEP for Your Child (Verywell Family)

Individuals with Disabilities Education Act (IDEA)
Information about the Individuals with Disabilities Education Act (IDEA), which makes available a free appropriate public education, special education, and related services to eligible children with disabilities

Employment

Cancer and Careers
Practical tools to help with job searching after cancer. Includes topics to help with interviews, career changes, and legal rights.

Working It Out: Your Employment Rights as a Cancer Survivor
Information and resources to address employment challenges survivors may face

The ADA: Your Employment Rights as an Individual with a Disability (U.S. Equal Employment Opportunity Commission)

Family and Medical Leave Act (FMLA)
Information about the right to take time off work due to illness or caring for an ill dependent without losing employment

Camps

Camp Mak-A-Dream
Camps for cancer patients, survivors, and siblings of all ages--children through adults.

Social networking

Resources for health care providers

Guidelines for Survivors of Childhood, Adolescent and Young Adult Cancers (Children's Oncology Group)
Recommendations for screening and management of late effects that may result from therapeutic exposures used during treatment for pediatric malignancies.

Health Care Professionals: Help Your Patients Quit Smoking (Centers for Disease Control)