This list provides links to useful, reliable information about childhood cancer survivorship. Resources for health care providers are also included.
National Cancer Institute, Office of Cancer Survivorship
National Cancer Institute, Patient Information
Information on cancer topics related to the late effects of cancer treatment
Survivorship During and After Treatment (American Cancer Society)
Life After Cancer (St. Jude Children's Research Hospital)
Life After Treatment (LIVESTRONG Foundation)
National Coalition of Cancer Survivorship
NCCS Cancer Survivor Toolbox
Skill-development for survivors, including finding the information you need, being assertive in your communications, and standing up for your rights.
Cancer.Net (American Society of Clinical Oncology)
Accurate, up-to-date information for survivors
Children's Oncology Group
Late effects services for survivors within Children’s Oncology Group member institutions
Introduction to Long-Term Follow-Up (Children’s Oncology Group HealthLinks)
English (pdf)
Spanish (pdf)
SMART ALACC
Adults Living After Childhood Cancer
HealthLinks (Children’s Oncology Group)
Information for survivors on nearly 50 topics related to the late-effects of cancer treatment, in English and Spanish.
Be healthy after treatment (American Cancer Society)
American Institute of Cancer Research
Information about nutrition and physical activity for survivors
MyFitnessPal
Free app for tracking food and activity
New Mouth
Oral health education developed by oral health providers
Skin Cancer Foundation
Information about sun protection and early detection of skin cancer
American Cancer Society
Information on sun exposure and cancer, sun protection, and how to perform a skin self-exam
Get Help Quitting Tobacco (American Cancer Society)
Smoke-free.gov
Online cessation resources
National Cancer Institute Quitline (NCI)
877-44U-QUIT (877-448-7848) (English and Spanish)
Telephone information and support
Centers for Disease Control (CDC)
1-800-784-8669 (1-800-QUIT-NOW)
Emotional issues after childhood cancer (Children’s Oncology Group HealthLinks)
English (pdf)
Spanish (pdf)
Cancer Care
Information about counseling and support
Anxiety and Depression Association
Detox Local*
*We have no experience with the specific centers and cannot vouch for their quality of care
Female Health Issues
English (pdf)
Spanish (pdf)
Male Health Issues
English (pdf)
Spanish (pdf)
Fertility information and resources (LIVESTRONG Foundation)
Fertility Scout (Alliance for Fertility Preservation)
Free tool to find fertility preservation services by geographic area
Oncofertility Consortium (Northwestern University)
Child Welfare Information Gateway (US Dept. of Health & Human Services)
The Samfund
Financial assistance and free online support for young adults facing financial challenges because of cancer
Suvivorvision
"Textbook Scholarships" to support pediatric cancer patient/survivors pursuing a college education
Resources to help survivors succeed in college (Affordable Colleges Online)
Educational Issues (Children's Oncology Group Healthlinks)
English (pdf)
Spanish (pdf)
Educating the Child with Cancer: A Guide for Parents and Teachers (American Childhood Cancer Organization)
How to Get an IEP for Your Child (Verywell Family)
Individuals with Disabilities Education Act (IDEA)
Information about the Individuals with Disabilities Education Act (IDEA), which makes available a free appropriate public education, special education, and related services to eligible children with disabilities
Cancer and Careers
Practical tools to help with job searching after cancer. Includes topics to help with interviews, career changes, and legal rights.
Working It Out: Your Employment Rights as a Cancer Survivor
Information and resources to address employment challenges survivors may face
The ADA: Your Employment Rights as an Individual with a Disability (U.S. Equal Employment Opportunity Commission)
Family and Medical Leave Act (FMLA)
Information about the right to take time off work due to illness or caring for an ill dependent without losing employment
Camp Mak-A-Dream
Camps for cancer patients, survivors, and siblings of all ages--children through adults.
Guidelines for Survivors of Childhood, Adolescent and Young Adult Cancers (Children's Oncology Group)
Recommendations for screening and management of late effects that may result from therapeutic exposures used during treatment for pediatric malignancies.
Health Care Professionals: Help Your Patients Quit Smoking (Centers for Disease Control)