Websites

This list provides links to useful, reliable information about childhood cancer survivorship. Resources for health care providers are also included.

Topics

General resources

National Cancer Institute, Office of Cancer Survivorship

National Cancer Institute, Patient Information
Information on cancer topics related to the late effects of cancer treatment

Survivorship During and After Treatment (American Cancer Society)

Life After Treatment (LIVESTRONG Foundation)

National Coalition of Cancer Survivorship

NCCS Cancer Survivor Toolbox
Skill-development for survivors, including finding the information you need, being assertive in your communications, and standing up for your rights.

Cancer.Net (American Society of Clinical Oncology)
Accurate, up-to-date information for survivors

Survivorship clinics

Children's Oncology Group
Late effects services for survivors within Children’s Oncology Group member institutions

Survivorship care plans

Introduction to Long-Term Follow-Up (Children’s Oncology Group HealthLinks)
English (pdf)
Spanish (pdf)

My Care Plan (Journey Forward)
Online tool to help coordinate care after active treatment has ended

Health

HealthLinks (Children’s Oncology Group)
Information for survivors on nearly 50 topics related to the late-effects of cancer treatment, in English and Spanish.

Be healthy after treatment (American Cancer Society)

American Institute of Cancer Research
Information about nutrition and physical activity for survivors

MyFitnessPal
Free app for tracking food and activity

Sun safety

Skin Cancer Foundation
Information about sun protection and early detection of skin cancer

American Cancer Society
Information on sun exposure and cancer, sun protection, and how to perform a skin self-exam

Tobacco/smoking cessation

Get Help Quitting Tobacco (American Cancer Society)

Smoke-free.gov
Online cessation resources

National Cancer Institute Quitline (NCI)
877-44U-QUIT (877-448-7848) (English and Spanish)
Telephone information and support

American Lung Association

Centers for Disease Control (CDC)
1-800-784-8669 (1-800-QUIT-NOW

Emotional wellbeing

Emotional issues after childhood cancer (Children’s Oncology Group HealthLinks)
English (pdf)
Spanish (pdf)

Cancer Care
Information about counseling and support

Anxiety and Depression Association

Fertility and reproductive issues

Female Health Issues
English (pdf)
Spanish (pdf)

Male Health Issues
English (pdf)
Spanish (pdf)

Becoming a parent after cancer (LIVESTRONG Foundation)

Fertility information and resources (LIVESTRONG Foundation)

Cancer and Fertility (American Society for Reproductive Medicine)

Fertility Scout (Alliance for Fertility Preservation)
Free tool to find fertility preservation services by geographic area

Oncofertility Consortium (Northwestern University)

Adoption

Child Welfare Information Gateway (US Dept. of Health & Human Services)

Adopt US Kids

Dave Thomas Foundation for Adoption

Help Us Adopt

Gift of Adoption Fund

Insurance

Finding and paying for health care (Children’s Oncology Group Healthlinks)
English (pdf)
Spanish (pdf)

Financial

The Samfund
Financial assistance and free online support for young adults facing financial challenges because of cancer

Suvivorvision
"Textbook Scholarships" to support pediatric cancer patient/survivors pursuing a college education

College Scholarships for Survivors (Ped-Onc Resource Center)
Compilation of scholarships for childhood cancer survivors

Resources to help survivors succeed in college (Affordable Colleges Online)

Education

Educational Issues (Children's Oncology Group Healthlinks)
English (pdf)
Spanish (pdf)

Educating the Child with Cancer: A Guide for Parents and Teachers (American Childhood Cancer Organization)

How to Get an IEP for Your Child (Verywell Family)

Individuals with Disabilities Education (IDEA) Act
Information about The Individuals with Disabilities Education Act (IDEA), which makes available a free appropriate public education, special education, and related services to eligible children with disabilities

Employment

Cancer and Careers
Practical tools to help with job searching after cancer. Includes topics to help with interviews, career changes, and legal rights.

Working It Out: Your Employment Rights as a Cancer Survivor
Information and resources to address employment challenges survivors may face

The ADA: Your Employment Rights as an Individual with a Disability (U.S. Equal Employment Opportunity Commission)

Family and Medical Leave Act (FMLA)
Information about the the right to take time off work due to illness or caring for an ill dependent without losing employment

Camps

Cancer Kid Camps (Ped-Onc Resource Center)
List by state of camps for cancer patients, survivors, and their siblings

Camp Mak-A-Dream
Camps for cancer patients, survivors, and siblings of all ages--children through adults.

Social networking

Stupid Cancer Facebook page

Regional Facebook support groups (Stupid Cancer)

Resources for health care providers

Guidelines for Survivors of Childhood, Adolescent and Young Adult Cancers (Children's Oncology Group)
Recommendations for screening and management of late effects that may result from therapeutic exposures used during treatment for pediatric malignancies.

Health Care Professionals: Help Your Patients Quit Smoking (Centers for Disease Control)