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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Risk of disease recurrence and second neoplasms in survivors of childhood cancer treated with growth hormone: A Report from the Childhood Cancer Survivor Study.

    2002

    Citation: 87(7):3136-41

    Author(s): Sklar CA, Mertens AC, Mitby P, Occhiogrosso G, Qin J, Heller G, Yasui Y, Robison LL.

    Journal: J Clin Endocrinol Metab

  • Study design and cohort characteristics of the Childhood Cancer Survivor Study: A multi-institutional collaborative project.

    2002

    Citation: 38(4):229-39

    Author(s): Robison LL, Mertens AC, Boice JD, Breslow NE, Donaldson SS, Green DM, Li FP, Meadows AT, Mulvihill JJ, Neglia JP, Nesbit ME, Packer RJ, Potter JD, Sklar CA, Smith MA, Stovall M, Strong LC, Yasui Y, Zeltzer LK.

    Journal: Med Pediatr Oncol

  • Late mortality experience in five-year survivors of childhood and adolescent cancer: The Childhood Cancer Survivor Study.

    2001

    Citation: 19(13):3163-72

    Author(s): Mertens AC, Yasui Y, Neglia JP, Potter JD, Nesbit ME Jr, Ruccione K, Smithson WA, Robison LL.

    Journal: J Clin Oncol

  • Second malignant neoplasms in five-year survivors of childhood cancer: Childhood Cancer Survivor Study.

    2001

    Citation: 93(8):618-29

    Author(s): Neglia JP, Friedman DL, Yasui Y, Mertens AC, Hammond S, Stovall M, Donaldson SS, Meadows AT, Robison LL.

    Journal: J Natl Cancer Inst

  • Abnormalities of the thyroid in survivors of Hodgkin's disease: Data from the Childhood Cancer Survivor Study.

    2000

    Citation: 85(9):3227-32

    Author(s): Sklar C, Whitton J, Mertens A, Stovall M, Green D, Marina N, Greffe B, Wolden S, Robison L.

    Journal: J Clin Endocrinol Metab

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