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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Obesity in adult survivors of childhood acute lymphoblastic leukemia: A Report from the Childhood Cancer Survivor Study.

    2003

    Citation: 21(7):1359-65

    Author(s): Oeffinger KC, Mertens AC, Sklar CA, Yasui Y, Fears T, Stovall M, Vik TA, Inskip PD, Robison LL.

    Journal: J Clin Oncol

  • Pregnancy outcome of partners of male survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2003

    Citation: 21(4):716-21

    Author(s): Green DM, Whitton JA, Stovall M, Mertens AC, Donaldson SS, Ruymann FB, Pendergrass TW, Robison LL.

    Journal: J Clin Oncol

  • Self-reported family history of cancer: The utility of probing questions.

    2003

    Citation: 14(6):737-40

    Author(s): Kadan-Lottick NS, Friedman DL, Mertens AC, Whitton JA, Yasui Y, Strong LC, Robison LL.

    Journal: Epidemiology

  • Smoking among participants in the childhood cancer survivors cohort: The Partnership for Health Study.

    2003

    Citation: 21(2):189-96

    Author(s): Emmons KM, Butterfield RM, Puleo E, Park ER, Mertens A, Gritz ER, Lahti M, Li FP.

    Journal: J Clin Oncol

  • Utilization of special education services and educational attainment among long-term survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2003

    Citation: 97(4):1115-26

    Author(s): Mitby PA, Robison LL, Whitton JA, Zevon MA, Gibbs IC, Tersak JM, Meadows AT, Stovall M, Zeltzer LK, Mertens AC.

    Journal: Cancer

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