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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Stroke as a late treatment effect of Hodgkin's disease: A Report from the Childhood Cancer Survivor Study.

    2005

    Citation: 23(27):6508-15

    Author(s): Bowers DC, McNeil DE, Liu Y, Yasui Y, Stovall M, Gurney JG, Hudson MM, Donaldson SS, Packer RJ, Mitby PA, Kasper CE, Robison LL, Oeffinger KC.

    Journal: J Clin Oncol

  • The Childhood Cancer Survivor Study: A resource for research of long-term outcomes among adult survivors of childhood cancer.

    2005

    Citation: 88(4):45-9

    Author(s): Robison LL.

    Journal: Minn Med

  • An examination of the dental utilization practices of adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2004

    Citation: 64(1):50-4

    Author(s): Yeazel MW, Gurney JG, Oeffinger KC, Mitby PA, Mertens AC, Hudson MM, Robison LL.

    Journal: J Public Health Dent

  • Breast cancer after childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2004

    Citation: 141(8):590-7

    Author(s): Kenney LB, Yasui Y, Inskip PD, Hammond S, Neglia JP, Mertens AC, Meadows AT, Friedman D, Robison LL, Diller L.

    Journal: Ann Intern Med

  • Characteristics of childhood cancer survivors predicted their successful tracing.

    2004

    Citation: 57(9):933-44

    Author(s): Mertens AC, Walls RS, Taylor L, Mitby PA, Whitton J, Inskip PD, Potter JD, Robison LL.

    Journal: J Clin Epidemiol

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