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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Late mortality experience in five-year survivors of childhood and adolescent cancer: The Childhood Cancer Survivor Study.

    2001

    Citation: 19(13):3163-72

    Author(s): Mertens AC, Yasui Y, Neglia JP, Potter JD, Nesbit ME Jr, Ruccione K, Smithson WA, Robison LL.

    Journal: J Clin Oncol

  • Second malignant neoplasms in five-year survivors of childhood cancer: Childhood Cancer Survivor Study.

    2001

    Citation: 93(8):618-29

    Author(s): Neglia JP, Friedman DL, Yasui Y, Mertens AC, Hammond S, Stovall M, Donaldson SS, Meadows AT, Robison LL.

    Journal: J Natl Cancer Inst

  • Abnormalities of the thyroid in survivors of Hodgkin's disease: Data from the Childhood Cancer Survivor Study.

    2000

    Citation: 85(9):3227-32

    Author(s): Sklar C, Whitton J, Mertens A, Stovall M, Green D, Marina N, Greffe B, Wolden S, Robison L.

    Journal: J Clin Endocrinol Metab

  • Marriage in the survivors of childhood cancer: A preliminary description from the Childhood Cancer Survivor Study.

    1999

    Citation: 33(1):60-3

    Author(s): Rauck AM, Green DM, Yasui Y, Mertens A, Robison LL.

    Journal: Med Pediatr Oncol

  • Problems in using age-stratum-specific reference rates for indirect standardization.

    1999

    Citation: 52(5):393-8

    Author(s): Yasui Y, Whitton J.

    Journal: J Clin Epidemiol

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