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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Metabolic syndrome and growth hormone deficiency in adult survivors of childhood acute lymphoblastic leukemia.

    2006

    Citation: 107(6):1303-12

    Author(s): Gurney JG, Ness KK, Sibley SD, O'Leary M, Dengel DR, Lee JM, Youngren NM, Glasser SP, Baker KS.

    Journal: Cancer

  • New primary neoplasms of the central nervous system in survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2006

    Citation: 98(21):1528-37

    Author(s): Neglia JP, Robison LL, Stovall M, Liu Y, Packer RJ, Hammond S, Yasui Y, Kasper CE, Mertens AC, Donaldson SS, Meadows AT, Inskip PD.

    Journal: J Natl Cancer Inst

  • Premature menopause in survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2006

    Citation: 98(13):890-6

    Author(s): Sklar CA, Mertens AC, Mitby P, Whitton J, Stovall M, Kasper C, Mulder J, Green D, Nicholson HS, Yasui Y, Robison LL.

    Journal: J Natl Cancer Inst

  • Risk of selected subsequent carcinomas in survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2006

    Citation: 24(3):476-83

    Author(s): Bassal M, Mertens AC, Taylor L, Neglia JP, Greffe BS, Hammond S, Ronckers CM, Friedman DL, Stovall M, Yasui YY, Robison LL, Meadows AT, Kadan-Lottick NS.

    Journal: J Clin Oncol

  • The risk of cancer in twins: A Report from the Childhood Cancer Survivor Study.

    2006

    Citation: 46(4):476-81

    Author(s): Kadan-Lottick NS, Kawashima T, Tomlinson G, Friedman DL, Yasui Y, Mertens AC, Robison LL, Strong LC.

    Journal: Pediatr Blood Cancer

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