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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Health insurance coverage in survivors of childhood cancer: The Childhood Cancer Survivor Study.

    2005

    Citation: 23(36):9187-97

    Author(s): Park ER, Li FP, Liu Y, Emmons KM, Ablin A, Robison LL, Mertens AC.

    Journal: J Clin Oncol

  • Increased risk of cancer among siblings of long-term childhood cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2005

    Citation: 14(8):1922-7

    Author(s): Friedman DL, Kadan-Lottick NS, Whitton J, Mertens AC, Yasui Y, Liu Y, Meadows AT, Robison LL, Strong LC.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Limitations on physical performance and daily activities among long-term survivors of childhood cancer.

    2005

    Citation: 143(9):639-47

    Author(s): Ness KK, Mertens AC, Hudson MM, Wall MM, Leisenring WM, Oeffinger KC, Sklar CA, Robison LL, Gurney JG.

    Journal: Ann Intern Med

  • Long-term medical effects of childhood and adolescent rhabdomyosarcoma: A Report from the Childhood Cancer Survivor Study.

    2005

    Citation: 44(7):643-53

    Author(s): Punyko JA, Mertens AC, Gurney JG, Yasui Y, Donaldson SS, Rodeberg DA, Raney RB, Stovall M, Sklar CA, Robison LL, Baker KS.

    Journal: Pediatr Blood Cancer

  • Long-term outcomes of adult survivors of childhood cancer.

    2005

    Citation: 104(11 Suppl):2557-64

    Author(s): Robison LL, Green DM, Hudson M, Meadows AT, Mertens AC, Packer RJ, Sklar CA, Strong LC, Yasui Y, Zeltzer LK.

    Journal: Cancer

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