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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Subsequent malignant neoplasms in survivors of childhood cancer: Childhood Cancer Survivor Study (CCSS) studies.

    2007

    Citation: 48(7):727-30

    Author(s): Davies SM.

    Journal: Pediatr Blood Cancer

  • A process evaluation of a telephone-based peer-delivered smoking cessation intervention for adult survivors of childhood cancer: The Partnership for Health Study.

    2006

    Citation: 42(6):435-42

    Author(s): Park ER, Puleo E, Butterfield RM, Zorn M, Mertens AC, Gritz ER, Li FP, Emmonds KM.

    Journal: Prev Med

  • Acute ovarian failure in the Childhood Cancer Survivor Study.

    2006

    Citation: 91(5):1723-8

    Author(s): Chemaitilly W, Mertens AC, Mitby P, Whitton J, Stovall M, Yasui Y, Robison LL, Sklar CA.

    Journal: J Clin Endocrinol Metab

  • Chronic health conditions in adult survivors of childhood cancer.

    2006

    Citation: 355(15):1572-82

    Author(s): Oeffinger KC, Mertens AC, Sklar CA, Kawashima T, Hudson MM, Meadows AT, Friedman DL, Marina N, Hobbie W, Kadan-Lottick NS, Schwartz CL, Leisenring W, Robison LL.

    Journal: N Engl J Med

  • Factor structure of the Brief Symptom Inventory--18 in adult survivors of childhood cancer: Results from the Childhood Cancer Survivor Study.

    2006

    Citation: 18(1):22-32

    Author(s): Recklitis CJ, Parsons SK, Shih MC, Mertens A, Robison LL, Zeltzer L.

    Journal: Psychol Assess

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