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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Genetic effects of radiotherapy for childhood cancer: Gonadal dose reconstruction.

    2004

    Citation: 60(2):542-52

    Author(s): Stovall M, Donaldson SS, Weathers RE, Robison LL, Mertens AC, Winther JF, Olsen JH, Boice JD Jr.

    Journal: Int J Radiat Oncol Biol Phys

  • Multiple risk behaviors among smokers in the Childhood Cancer Survivor Study cohort.

    2004

    Citation: 13(9):619-29

    Author(s): Butterfield RM, Park ER, Puleo E, Mertens A, Gritz ER, Li FP, Emmons K.

    Journal: Psychooncology

  • Psychological outcomes in long-term survivors of childhood brain cancer: A Report from the Childhood Cancer Survivor Study.

    2004

    Citation: 22(6):999-1006

    Author(s): Zebrack BJ, Gurney JG, Oeffinger K, Whitton J, Packer RJ, Mertens A, Turk N, Castleberry R, Dreyer Z, Robison LL, Zeltzer LK.

    Journal: J Clin Oncol

  • XRCC1 and glutathione S-transferase gene polymorphism and susceptibility to radiotherapy-related malignancies in survivors of Hodgkin disease.

    2004

    Citation: 101(6):1463-72

    Author(s): Mertens AC, Mitby PA, Radloff G, Jones IM, Perentesis J, Kiffmeyer WR, Neglia JP, Meadows A, Potter JD, Friedman D, Yasui Y, Robison LL, Davies SM.

    Journal: Cancer

  • Education, employment, insurance and marital status among 694 survivors of pediatric lower extremity bone tumors: A Report from the Childhood Cancer Survivor Study.

    2003

    Citation: 97(10):2554-64

    Author(s): Nagarajan R, Neglia JP, Clohisy DR, Yasui Y, Greenberg M, Hudson M, Zevon MA, Tersak JM, Ablin A, Robison LL.

    Journal: Cancer

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