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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • An examination of the dental utilization practices of adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2004

    Citation: 64(1):50-4

    Author(s): Yeazel MW, Gurney JG, Oeffinger KC, Mitby PA, Mertens AC, Hudson MM, Robison LL.

    Journal: J Public Health Dent

  • Factors that affect final height and change in height standard deviation scores in survivors of childhood cancer treated with growth hormone: A Report from the Childhood Cancer Survivor Study.

    2004

    Citation: 89(9):4422-7

    Author(s): Brownstein CM, Mertens AC, Mitby PA, Stovall M, Qin J, Heller G, Robison LL, Sklar CA.

    Journal: J Clin Endocrinol Metab

  • The cancer screening practices of adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2004

    Citation: 100(3):631-40

    Author(s): Yeazel MW, Oeffinger KC, Gurney JG, Mertens AC, Hudson MM, Emmons KM, Chen H, Robison LL.

    Journal: Cancer

  • Genetic variation in the leptin receptor gene and obesity in survivors of childhood acute lymphoblastic leukemia: A Report from the Childhood Cancer Survivor Study.

    2004

    Citation: 22(17):3558-62

    Author(s): Ross JA, Oeffinger KC, Davies SM, Mertens AC, Langer EK, Kiffmeyer WR, Sklar CA, Stovall M, Yasui Y, Robison LL.

    Journal: J Clin Oncol

  • Characteristics of childhood cancer survivors predicted their successful tracing.

    2004

    Citation: 57(9):933-44

    Author(s): Mertens AC, Walls RS, Taylor L, Mitby PA, Whitton J, Inskip PD, Potter JD, Robison LL.

    Journal: J Clin Epidemiol

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