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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Longitudinal changes in obesity and body mass index among adult survivors of childhood acute lymphoblastic leukemia: A Report from the Childhood Cancer Survivor Study.

    2008

    Citation: 26(28):4639-45

    Author(s): Garmey EG, Liu Q, Sklar CA, Meacham LR, Mertens AC, Stovall MA, Yasui Y, Robison LL, Oeffinger KC.

    Journal: J Clin Oncol

  • Medical care in long-term survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2008

    Citation: 26(27):4401-9

    Author(s): Nathan PC, Greenberg ML, Ness KK, Hudson MM, Mertens AC, Mahoney MC, Gurney JG, Donaldson SS, Leisenring WM, Robison LL, Oeffinger KC.

    Journal: J Clin Oncol

  • Osteonecrosis in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2008

    Citation: 26(18):3038-45

    Author(s): Kadan-Lottick NS, Dinu I, Wasilweski-Masker K, Kaste S, Meacham LR, Mahajan A, Stovall M, Yasui Y, Robison LL, Sklar CA.

    Journal: J Clin Oncol

  • Poor adherence to dietary guidelines among adult survivors of childhood acute lymphoblastic leukemia.

    2008

    Citation: 30(11):815-22

    Author(s): Robien K, Ness KK, Klesges LM, Baker KS, Gurney JG.

    Journal: J Pediatr Hematol Oncol

  • Prediction of second malignant neoplasm incidence in a large cohort of long-term survivors of childhood cancers.

    2008

    Citation: 50(5):1026-31

    Author(s): Dinu I, Liu Y, Leisenring W, Mertens AC, Neglia JP, Hammond S, Robison LL, Yasui Y.

    Journal: Pediatr Blood Cancer

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