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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Nonmelanoma skin cancer in survivors of childhood and adolescent cancer: A Report from the Childhood Cancer Survivor Study.

    2005

    Citation: 23(16):3733-41

    Author(s): Perkins JL, Liu Y, Mitby PA, Neglia JP, Hammond S, Stovall M, Meadows AT, Hutchinson R, Dreyer ZE, Robison LL, Mertens AC.

    Journal: J Clin Oncol

  • Stroke as a late treatment effect of Hodgkin's disease: A Report from the Childhood Cancer Survivor Study.

    2005

    Citation: 23(27):6508-15

    Author(s): Bowers DC, McNeil DE, Liu Y, Yasui Y, Stovall M, Gurney JG, Hudson MM, Donaldson SS, Packer RJ, Mitby PA, Kasper CE, Robison LL, Oeffinger KC.

    Journal: J Clin Oncol

  • Function and quality-of-life of survivors of pelvic and lower extremity osteosarcoma and Ewing's sarcoma: The Childhood Cancer Survivor Study.

    2004

    Citation: 91(11):1858-65

    Author(s): Nagarajan R, Clohisy DR, Neglia JP, Yasui Y, Mitby PA, Sklar C, Finklestein JZ, Greenberg M, Reaman GH, Zeltzer L, Robison LL.

    Journal: Br J Cancer

  • Breast cancer after childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2004

    Citation: 141(8):590-7

    Author(s): Kenney LB, Yasui Y, Inskip PD, Hammond S, Neglia JP, Mertens AC, Meadows AT, Friedman D, Robison LL, Diller L.

    Journal: Ann Intern Med

  • Health care of young adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2004

    Citation: 2(1):61-70

    Author(s): Oeffinger KC, Mertens AC, Hudson MM, Gurney JG, Casillas J, Chen H, Whitton J, Yeazel M, Yasui Y, Robison LL.

    Journal: Ann Fam Med

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