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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Health insurance coverage in survivors of childhood cancer: The Childhood Cancer Survivor Study.

    2005

    Citation: 23(36):9187-97

    Author(s): Park ER, Li FP, Liu Y, Emmons KM, Ablin A, Robison LL, Mertens AC.

    Journal: J Clin Oncol

  • Body mass index in long-term adult survivors of childhood cancer: A Report of the Childhood Cancer Survivor Study.

    2005

    Citation: 103(8):1730-9

    Author(s): Meacham LR, Gurney JG, Mertens AC, Ness KK, Sklar CA, Robison LL, Oeffinger KC.

    Journal: Cancer

  • The Childhood Cancer Survivor Study: A resource for research of long-term outcomes among adult survivors of childhood cancer.

    2005

    Citation: 88(4):45-9

    Author(s): Robison LL.

    Journal: Minn Med

  • Limitations on physical performance and daily activities among long-term survivors of childhood cancer.

    2005

    Citation: 143(9):639-47

    Author(s): Ness KK, Mertens AC, Hudson MM, Wall MM, Leisenring WM, Oeffinger KC, Sklar CA, Robison LL, Gurney JG.

    Journal: Ann Intern Med

  • Long-term outcomes of adult survivors of childhood cancer.

    2005

    Citation: 104(11 Suppl):2557-64

    Author(s): Robison LL, Green DM, Hudson M, Meadows AT, Mertens AC, Packer RJ, Sklar CA, Strong LC, Yasui Y, Zeltzer LK.

    Journal: Cancer

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