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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Cause-specific mortality and second cancer incidence after non-Hodgkin lymphoma: A Report from the Childhood Cancer Survivor Study.

    2008

    Citation: 111(8):4014-21

    Author(s): Bluhm EC, Ronckers C, Hayashi RJ, Neglia JP, Mertens AC, Stovall M, Meadows AT, Mitby PA, Whitton JA, Hammond S, Barker JD, Donaldson SS, Robison LL, Inskip PD

    Journal: Blood

  • Complementary and alternative therapy use in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2008

    Citation: 50(1):90-7

    Author(s): Mertens AC, Sencer S, Myers CD, Recklitis C, Kadan-Lottick N, Whitton J, Marina N, Robison LL, Zeltzer L.

    Journal: Pediatr Blood Cancer

  • Employment status among adult survivors in the Childhood Cancer Survivor Study.

    2008

    Citation: 50(1):104-10

    Author(s): Pang JW, Friedman DL, Whitton JA, Stovall M, Mertens AC, Robison LL, Weiss NS.

    Journal: Pediatr Blood Cancer

  • Fatigue and sleep disturbance in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study (CCSS).

    2008

    Citation: 31(2):271-81

    Author(s): Mulrooney DA, Ness KK, Neglia JP, Whitton JA, Green DM, Zeltzer LK, Robison LL, Mertens AC.

    Journal: Sleep

  • Genetic polymorphisms in the carbonyl reductase 3 gene CBR3 and the NAD(P)H: quinone oxidoreductase 1 gene NQO1 in patients who developed anthracycline-related congestive heart failure after childhood cancer.

    2008

    Citation: 112(12):2789-95

    Author(s): Blanco JG, Leisenring WM, Gonzalez-Covarrubias VM, Kawashima TI, Davies SM, Relling MV, Robison LL, Sklar CA, Stovall M, Bhatia S.

    Journal: Cancer

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