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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Thyroid cancer in childhood cancer survivors: A detailed evaluation of radiation dose response and its modifiers.

    2006

    Citation: 166(4):618-28

    Author(s): Ronckers CM, Sigurdson AJ, Stovall M, Smith SA, Mertens AC, Liu Y, Hammond S, Land CE, Neglia JP, Donaldson SS, Meadows AT, Sklar CA, Robison LL, Inskip PD.

    Journal: Radiat Res

  • Late-occurring stroke among long-term survivors of childhood leukemia and brain tumors: A Report from the Childhood Cancer Survivor Study.

    2006

    Citation: 24(33):5277-82

    Author(s): Bowers DC, Liu Y, Leisenring W, McNeil E, Stovall M, Gurney JG, Robison LL, Packer RJ, Oeffinger KC.

    Journal: J Clin Oncol

  • Risk of selected subsequent carcinomas in survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2006

    Citation: 24(3):476-83

    Author(s): Bassal M, Mertens AC, Taylor L, Neglia JP, Greffe BS, Hammond S, Ronckers CM, Friedman DL, Stovall M, Yasui YY, Robison LL, Meadows AT, Kadan-Lottick NS.

    Journal: J Clin Oncol

  • Metabolic syndrome and growth hormone deficiency in adult survivors of childhood acute lymphoblastic leukemia.

    2006

    Citation: 107(6):1303-12

    Author(s): Gurney JG, Ness KK, Sibley SD, O'Leary M, Dengel DR, Lee JM, Youngren NM, Glasser SP, Baker KS.

    Journal: Cancer

  • Acute ovarian failure in the Childhood Cancer Survivor Study.

    2006

    Citation: 91(5):1723-8

    Author(s): Chemaitilly W, Mertens AC, Mitby P, Whitton J, Stovall M, Yasui Y, Robison LL, Sklar CA.

    Journal: J Clin Endocrinol Metab

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