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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Promoting physical activity in childhood cancer survivors: Results from the Childhood Cancer Survivor Study.

    2009

    Citation: 115(3):642-54

    Author(s): Cox CL, Montgomery M, Oeffinger KC, Leisenring W, Zeltzer L, Whitton JA, Mertens AC, Hudson MM, Robison LL.

    Journal: Cancer

  • Psychological status in childhood cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 27(14): 2396-404

    Author(s): Zeltzer LK, Recklitis C, Buchbinder D, Zebrack B, Casillas J, Tsao JC, Lu Q, Krull K.

    Journal: J Clin Oncol

  • Radiation dose and breast cancer risk in the Childhood Cancer Survivor Study.

    2009

    Citation: 27(24):3901-7

    Author(s): Inskip PD, Robison LL, Stovall M, Smith SA, Hammond S, Mertens AC, Whitton JA, Diller L, Kenney L, Donaldson SS, Meadows AT, Neglia JP.

    Journal: J Clin Oncol

  • Risk of thyroid dysfunction and subsequent thyroid cancer among survivors of acute lymphoblastic leukemia: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 53(3):432-7

    Author(s): Chow EJ, Friedman DL, Stovall M, Yasui Y, Whitton JA, Robison LL, Sklar CA.

    Journal: Pediatr Blood Cancer

  • Second neoplasms in survivors of childhood cancer: Findings from the Childhood Cancer Survivor Study cohort.

    2009

    Citation: 27(14): 2356-62

    Author(s): Meadows AT, Friedman DL, Neglia JP, Mertens AC, Donaldson SS, Stovall M, Hammond S, Yasui Y, Inskip PD.

    Journal: J Clin Oncol

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