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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Chronic health conditions in adult survivors of childhood cancer.

    2006

    Citation: 355(15):1572-82

    Author(s): Oeffinger KC, Mertens AC, Sklar CA, Kawashima T, Hudson MM, Meadows AT, Friedman DL, Marina N, Hobbie W, Kadan-Lottick NS, Schwartz CL, Leisenring W, Robison LL.

    Journal: N Engl J Med

  • Growth hormone treatment and risk of second neoplasms in the childhood cancer survivor.

    2006

    Citation: 91(9):3494-8

    Author(s): Ergun-Longmire B, Mertens AC, Mitby P, Qin J, Heller G, Shi W, Yasui Y, Robison LL, Sklar CA.

    Journal: J Clin Endocrinol Metab

  • Female survivors of childhood cancer: Preterm birth and low birth weight among their children.

    2006

    Citation: 98(20):1453-61

    Author(s): Signorello LB, Cohen SS, Bosetti C, Stovall M, Kasper CE, Weathers RE, Whitton JA, Green DM, Donaldson SS, Mertens AC, Robison LL, Boice JD Jr.

    Journal: J Natl Cancer Inst

  • Premature menopause in survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2006

    Citation: 98(13):890-6

    Author(s): Sklar CA, Mertens AC, Mitby P, Whitton J, Stovall M, Kasper C, Mulder J, Green D, Nicholson HS, Yasui Y, Robison LL.

    Journal: J Natl Cancer Inst

  • A process evaluation of a telephone-based peer-delivered smoking cessation intervention for adult survivors of childhood cancer: The Partnership for Health Study.

    2006

    Citation: 42(6):435-42

    Author(s): Park ER, Puleo E, Butterfield RM, Zorn M, Mertens AC, Gritz ER, Li FP, Emmonds KM.

    Journal: Prev Med

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