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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Pediatric cancer survivorship research: Experience of the Childhood Cancer Survivor Study.

    2009

    Citation: 27(14): 2319-27

    Author(s): Leisenring WM, Mertens AC, Armstrong GT, Stovall MA, Neglia JP, Lanctot JQ, Boice JD Jr, Whitton JA, Yasui Y.

    Journal: J Clin Oncol

  • Physical performance limitations in the Childhood Cancer Survivor Study Cohort.

    2009

    Citation: 27(14): 2382-9

    Author(s): Ness KK, Hudson MM, Ginsberg JP, Nagarajan R, Kaste SC, Marina N, Whitton J, Robison LL, Gurney JG.

    Journal: J Clin Oncol

  • Predictors of inactive lifestyle among adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 115(9):1984-94

    Author(s): Ness KK, Leisenring WM, Huang S, Hudson MM, Gurney JG, Whelan K, Hobbie WL, Armstrong GT, Robison LL, Oeffinger KC.

    Journal: Cancer

  • Predictors of marriage and divorce in adult survivors of childhood cancers: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 18(10):2626-35

    Author(s): Janson C, Leisenring W, Cox C, Termuhlen AM, Mertens AC, Whitton JA, Goodman P, Zeltzer L, Robison LL, Krull KR, Kadan-Lottick NS.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Promoting physical activity in childhood cancer survivors: Results from the Childhood Cancer Survivor Study.

    2009

    Citation: 115(3):642-54

    Author(s): Cox CL, Montgomery M, Oeffinger KC, Leisenring W, Zeltzer L, Whitton JA, Mertens AC, Hudson MM, Robison LL.

    Journal: Cancer

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