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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Health-related quality of life in adult survivors of childhood Wilms tumor or neuroblastoma: A Report from the Childhood Cancer Survivor Study.

    2007

    Citation: 49(5):704-15

    Author(s): Nathan PC, Ness KK, Greenberg ML, Hudson M, Wolden S, Davidoff A, Laverdiere C, Mertens A, Whitton J, Robison LL, Zeltzer L, Gurney JG.

    Journal: Pediatr Blood Cancer

  • Secondary sarcomas in childhood cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2007

    Citation: 99(4):300-8

    Author(s): Henderson TO, Whitton J, Stovall M, Mertens AC, Mitby P, Friedman D, Strong LC, Hammond S, Neglia JP, Meadows AT, Robison L, Diller L.

    Journal: J Natl Cancer Inst

  • New primary neoplasms of the central nervous system in survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2006

    Citation: 98(21):1528-37

    Author(s): Neglia JP, Robison LL, Stovall M, Liu Y, Packer RJ, Hammond S, Yasui Y, Kasper CE, Mertens AC, Donaldson SS, Meadows AT, Inskip PD.

    Journal: J Natl Cancer Inst

  • The risk of cancer in twins: A Report from the Childhood Cancer Survivor Study.

    2006

    Citation: 46(4):476-81

    Author(s): Kadan-Lottick NS, Kawashima T, Tomlinson G, Friedman DL, Yasui Y, Mertens AC, Robison LL, Strong LC.

    Journal: Pediatr Blood Cancer

  • Factor structure of the Brief Symptom Inventory--18 in adult survivors of childhood cancer: Results from the Childhood Cancer Survivor Study.

    2006

    Citation: 18(1):22-32

    Author(s): Recklitis CJ, Parsons SK, Shih MC, Mertens A, Robison LL, Zeltzer L.

    Journal: Psychol Assess

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