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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Long-Term Smoking Cessation Outcomes Among Childhood Cancer Survivors in The Partnership for Health Study.

    2009

    Citation: 27(1):52-60

    Author(s): Emmons KM, Puleo E, Mertens A, Gritz ER, Diller L, Li FP.

    Journal: J Clin Oncol

  • Medical care in long-term survivors of childhood cancer: a report from the childhood cancer survivor study.

    2009

    Citation: 26(27):4401-9

    Author(s): Nathan PC, Greenberg ML, Ness KK, Hudson MM, Mertens AC, Mahoney MC, Gurney, Donaldson SS, Leisenring WM, Robison LL, Oeffinger KC

    Journal: J Clin Oncol

  • Medical screening participation in the childhood cancer survivor study.

    2009

    Citation: 169(5):454-62

    Author(s): Cox CL, Hudson MM, Mertens A, Oeffinger K, Whitton J, Montgomery M, Robison LL.

    Journal: Arch Intern Med

  • Neurocognitive status in long-term survivors of childhood CNS malignancies: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 23(6):705-17

    Author(s): Ellenberg L, Liu Q, Gioia G, Yasui Y, Packer RJ, Mertens A, Donaldson SS, Stovall M, Kadan-Lottick N, Armstrong G, Robison LL, Zeltzer LK.

    Journal: Neuropsychology

  • Ovarian failure and reproductive outcomes after childhood cancer treatment: Results from the Childhood Cancer Survivor Study.

    2009

    Citation: 27(14): 2374-81

    Author(s): Green DM, Sklar CA, Boice JD Jr, Mulvihill JJ, Whitton JA, Stovall M, Yasui Y.

    Journal: J Clin Oncol

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