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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Impact of radiation and chemotherapy on risk of dental abnormalities: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 115(24): 5817-27

    Author(s): Kaste SC, Goodman P, Leisenring W, Stovall M, Hayashi RJ, Yeazel M, Beiraghi S, Hudson MM, Sklar CA, Robison LL, Baker KS.

    Journal: Cancer

  • Late mortality among 5-year survivors of childhood cancer: A summary from the Childhood Cancer Survivor Study

    2009

    Citation: 27(14): 2328-38

    Author(s): Armstrong GT, Liu Q, Yasui Y, Neglia JP, Leisenring W, Robison LL, Mertens AC.

    Journal: J Clin Oncol

  • Late recurrence in pediatric cancer: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 101(24): 1709-20

    Author(s): Wasilewski-Masker K, Liu Q, Yasui Y, Leisenring W, Meacham LR, Hammond S, Meadows AT, Robison LL, Mertens AC.

    Journal: J Natl Cancer Inst

  • Long-term outcomes among adult survivors of childhood central nervous system malignancies in the Childhood Cancer Survivor Study.

    2009

    Citation: 101(13):946-58

    Author(s): Armstrong GT, Liu Q, Yasui Y, Huang S, Ness KK, Leisenring W, Hudson MM, Donaldson SS, King AA, Stovall M, Krull KR, Robison LL, Packer RJ.

    Journal: J Natl Cancer Inst

  • Long-term outcomes in survivors of Neuroblastoma: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 101(16):1131-40

    Author(s): Laverdiere C, Liu Q, Yasui Y, Nathan PC, Gurney JG, Stovall M, Diller LR, Cheung NK, Wolden S, Robison LL, Sklar CA.

    Journal: J Natl Cancer Inst

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