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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Determinants of mammography screening participation in adult childhood cancer survivors: Results from the Childhood Cancer Survivor Study.

    2009

    Citation: 36(3):335-344

    Author(s): Cox CL, Oeffinger KC, Montgomery M, Hudson MM, Mertens AC, Whitton J, Robison LL.

    Journal: Oncol Nurs Forum

  • Diabetes Mellitus in Long-Term Survivors of Childhood Cancer. Increased Risk Associated with Radiation Therapy: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 169(15): 1381-8

    Author(s): Meacham LR, Sklar CA, Li S, Liu Q, Gimpel N, Yasui Y, Whitton JA, Stovall M, Robison LL, Oeffinger KC.

    Journal: Arch Intern Med

  • Fertility of female survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 27(16):2677-85

    Author(s): Green DM, Kawashima T, Stovall M, Leisenring W, Sklar CA, Mertens AC, Donaldson SS, Byrne J, Robison LL.

    Journal: J Clin Oncol

  • Health behaviors, medical care, and interventions to promote healthy living in the Childhood Cancer Survivor Study.

    2009

    Citation: 27(14): 2363-73

    Author(s): Nathan PC, Ford JS, Henderson TO, Hudson MM, Emmons KM, Casillas JN, Lown EA, Ness KK, Oeffinger KC.

    Journal: J Clin Oncol

  • High-risk populations identified in Childhood Cancer Survivor Study Investigations: Implications for risk-based surveillance.

    2009

    Citation: 27(14): 2405-14

    Author(s): Hudson MM, Mulrooney DA, Bowers DC, Sklar CA, Green DM, Donaldson SS, Oeffinger KC, Neglia JP, Meadows AT, Robison LL.

    Journal: J Clin Oncol

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