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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Assessment of selection bias in clinic-based populations of childhood cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 52(3):379-86

    Author(s): Ness KK, Leisenring W, Goodman P, Kawashima T, Mertens AC, Oeffinger KC, Armstrong GT, Robison LL.

    Journal: Pediatr Blood Cancer

  • Behaviors associated with ultraviolet radiation exposure in a cohort of adult survivors of childhood and adolescent cancer: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 115(18 Suppl):4374-84

    Author(s): Buchanan N, Leisenring W, Mitby PA, Meadows AT, Robison LL, Hudson MM, Mertens AC.

    Journal: Cancer

  • Breast cancer surveillance practices among women previously treated with chest radiation for a childhood cancer.

    2009

    Citation: 301(4):404-14

    Author(s): Oeffinger KC, Ford JS, Moskowitz CS, Diller LR, Hudson MM, Chou JF, Smith SM, Mertens AC, Henderson TO, Friedman DL, Leisenring WM, Robison LL.

    Journal: JAMA

  • Cardiac outcomes in a cohort of adult survivors of childhood and adolescent cancer: Retrospective analysis of the Childhood Cancer Survivor Study cohort.

    2009

    Citation: 339:b4606

    Author(s): Mulrooney DA, Yeazel MW, Kawashima T, Mertens AC, Mitby P, Stovall M, Donaldson SS, Green DM, Sklar CA, Robison LL, Leisenring WM.

    Journal: BMJ

  • Chronic disease in the Childhood Cancer Survivor Study cohort: A review of published findings

    2009

    Citation: 27(14): 2339-55

    Author(s): Diller L, Chow EJ, Gurney JG, Hudson MM, Kadan-Lottick NS, Kawashima TI, Leisenring WM, Meacham LR, Mertens AC, Mulrooney DA, Oeffinger KC, Packer RJ, Robison LL, Sklar CA.

    Journal: J Clin Oncol

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