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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Secondary Malignant Neoplasms after Wilms Tumor: An International Collaborative Study.

    2010

    Citation: 127(3): 657-66

    Author(s): Breslow NE, Lange JM, Friedman DL, Green DM, Hawkins MM, Murphy MF, Neglia JP, Olsen JH, Peterson SM, Stiller CA, Robison LL.

    Journal: Int J Cancer

  • Stillbirth and neonatal death in relation to radiation exposure before conception: A retrospective cohort study.

    2010

    Citation: 376(9741): 624-30

    Author(s): Signorello LB, Mulvihill JJ, Green DM, Munro HM, Stovall M, Weathers RE, Mertens AC, Whitton JA, Robison LL, Boice JD Jr.

    Journal: Lancet

  • Subsequent neoplasms in 5-year survivors of childhood cancer: The Childhood Cancer Survivor Study.

    2010

    Citation: 102(14): 1083-95

    Author(s): Friedman DL, Whitton J, Leisenring W, Mertens AC, Hammond S, Stovall M, Donaldson SS, Meadows AT, Robison LL, Neglia JP.

    Journal: J Natl Cancer Inst

  • Suicide ideation in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 28(4): 655-61

    Author(s): Recklitis CJ, Diller LR, Li X, Najita J, Robison LL, Zeltzer L.

    Journal: J Clin Oncol

  • Unemployment among adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 48(11):1015-25

    Author(s): Kirchhoff AC, Leisenring W, Krull KR, Ness KK, Friedman DL, Armstrong GT, Stovall M, Park ER, Oeffinger KC, Hudson MM, Robison LL, Wickizer T.

    Journal: Med Care

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