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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Complementary and alternative therapy use in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2008

    Citation: 50(1):90-7

    Author(s): Mertens AC, Sencer S, Myers CD, Recklitis C, Kadan-Lottick N, Whitton J, Marina N, Robison LL, Zeltzer L.

    Journal: Pediatr Blood Cancer

  • Alcohol consumption patterns and risk factors among childhood cancer survivors compared to siblings and general population peers.

    2008

    Citation: 103(7):1139-48

    Author(s): Lown EA, Goldsby R, Mertens AC, Greenfield T, Bond J, Whitton J, Korcha R, Robison LL, Zeltzer LK.

    Journal: Addiction

  • Reliability and validity of the Childhood Cancer Survivor Study Neurocognitive Questionnaire.

    2008

    Citation: 113(8):2188-97

    Author(s): Krull KR, Gioia G, Ness KK, Ellenberg L, Recklitis C, Leisenring W, Huang S, Stovall M, Robison LL, Zeltzer L.

    Journal: Cancer

  • Twenty years follow-up among survivors of childhood and young adult acute myeloid leukemia: A Report from the Childhood Cancer Survivor Study.

    2008

    Citation: 112(9):2071-9

    Author(s): Mulrooney DA, Dover DC, Li S, Yasui Y, Ness KK, Mertens AC, Neglia JP, Sklar CA, Robison LL, Davies SM.

    Journal: Cancer

  • Genetic polymorphisms in the carbonyl reductase 3 gene CBR3 and the NAD(P)H: quinone oxidoreductase 1 gene NQO1 in patients who developed anthracycline-related congestive heart failure after childhood cancer.

    2008

    Citation: 112(12):2789-95

    Author(s): Blanco JG, Leisenring WM, Gonzalez-Covarrubias VM, Kawashima TI, Davies SM, Relling MV, Robison LL, Sklar CA, Stovall M, Bhatia S.

    Journal: Cancer

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