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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Cause-specific late mortality among 5-year survivors of childhood cancer: The Childhood Cancer Survivor Study.

    2008

    Citation: 100(19):1368-79

    Author(s): Mertens AC, Liu Q, Neglia JP, Wasilewski K, Leisenring W, Armstrong GT, Robison LL, Yasui Y.

    Journal: J Natl Cancer Inst

  • Employment status among adult survivors in the Childhood Cancer Survivor Study.

    2008

    Citation: 50(1):104-10

    Author(s): Pang JW, Friedman DL, Whitton JA, Stovall M, Mertens AC, Robison LL, Weiss NS.

    Journal: Pediatr Blood Cancer

  • Poor adherence to dietary guidelines among adult survivors of childhood acute lymphoblastic leukemia.

    2008

    Citation: 30(11):815-22

    Author(s): Robien K, Ness KK, Klesges LM, Baker KS, Gurney JG.

    Journal: J Pediatr Hematol Oncol

  • Twenty-five-year follow-up among survivors of childhood acute lymphoblastic leukemia: A Report from the Childhood Cancer Survivor Study.

    2008

    Citation: 111(12):5515-23

    Author(s): Mody R, Li S, Dover DC, Sallan S, Leisenring W, Oeffinger KC, Yasui Y, Robison LL, Neglia JP.

    Journal: Blood

  • Timing of menarche among survivors of childhood acute lymphoblastic leukemia: A Report from the Childhood Cancer Survivor Study.

    2008

    Citation: 50(4):854-8

    Author(s): Chow EJ, Friedman DL, Yasui Y, Whitton JA, Stovall M, Robison LL, Sklar CA.

    Journal: Pediatr Blood Cancer

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