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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Breast cancer surveillance practices among women previously treated with chest radiation for a childhood cancer.

    2009

    Citation: 301(4):404-14

    Author(s): Oeffinger KC, Ford JS, Moskowitz CS, Diller LR, Hudson MM, Chou JF, Smith SM, Mertens AC, Henderson TO, Friedman DL, Leisenring WM, Robison LL.

    Journal: JAMA

  • Medical care in long-term survivors of childhood cancer: a report from the childhood cancer survivor study.

    2009

    Citation: 26(27):4401-9

    Author(s): Nathan PC, Greenberg ML, Ness KK, Hudson MM, Mertens AC, Mahoney MC, Gurney, Donaldson SS, Leisenring WM, Robison LL, Oeffinger KC

    Journal: J Clin Oncol

  • Impact of radiation and chemotherapy on risk of dental abnormalities: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 115(24): 5817-27

    Author(s): Kaste SC, Goodman P, Leisenring W, Stovall M, Hayashi RJ, Yeazel M, Beiraghi S, Hudson MM, Sklar CA, Robison LL, Baker KS.

    Journal: Cancer

  • The Childhood Cancer Survivor Study: A National Cancer Institute-Supported resource for outcome and intervention research.

    2009

    Citation: 27(14):2308-18

    Author(s): Robison LL, Armstrong GT, Boice JD, Chow EJ, Davies SM, Donaldson SS, Green DM, Hammond S, Meadows AT, Mertens AC, Mulvihill JJ, Nathan PC, Neglia JP, Packer RJ, Rajaraman P, Sklar CA, Stovall M, Strong LC, Yasui Y, Zeltzer LK.

    Journal: J Clin Oncol

  • Longitudinal changes in obesity and body mass index among adult survivors of childhood acute lymphoblastic leukemia: A Report from the Childhood Cancer Survivor Study.

    2008

    Citation: 26(28):4639-45

    Author(s): Garmey EG, Liu Q, Sklar CA, Meacham LR, Mertens AC, Stovall MA, Yasui Y, Robison LL, Oeffinger KC.

    Journal: J Clin Oncol

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